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Ambitious Amarey

Organized by: Amarilis Franjul

Amarilis' Photo
Amarilis' Photo
Amarilis' Photo
Amarilis' Photo
Amarilis' Photo

THE STORY:

My 4 year old daughter was diagnosed with Sickle Cell Disease at birth. In her 4 years of life, she has been hospitalized more than 20 times, has received more than 15 blood transfusions, has had acute chest syndrome twice and pneumonia countless times. We want to bring more awareness to this disease so that the FDA and the government see how important it is to reinstate grants for research, education, early detection, medicine research, and awareness! The only cure for this disease is bone marrow transplant and a high percentage of patients do not qualify for the risky procedure, let alone cannot afford it. My daughter was given a life expectancy of 45 years of age. My goal is to raise money for the national and community based organizations to help with the process of trying to break the cycle. My daughter has lived life in a bubble because her immune system is so weak, I want to show her that when you BELIEVE, all things are possible. I want to teach her that advocacy is so important because if we don't speak up, our voices and concerns will never be heard!! One voice can make a difference, a million can change the world. Help me help these individuals live a longer and better life. Help me raise money to find a cure in my daughters lifetime. Help me make a difference!


"Sickle cell anemia (sickle cell disease) is a disorder of the blood caused by an inherited abnormal hemoglobin (the oxygen-carrying protein within the red blood cells). The abnormal hemoglobin causes distorted (sickled) red blood cells. The sickled red blood cells are fragile and prone to rupture. When the number of red blood cells decreases from rupture (hemolysis), anemia is the result. This condition is referred to as sickle cell anemia. The irregular sickled cells can also block blood vessels causing tissue and organ damage and pain."

$115

 

1% Raised of $20,000 Goal

  • Anonymous

    $15

  • Justin & Valerie

    $50

  • Jose y Minnie

    $50

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Organized by

Amarilis Franjul

This is a direct to organizer fundraiser.

Donor Comments

Jose y Minnie

Jose y Minnie

DONATION: $50

God bless this angel. 3 years ago

Justin & Valerie

Justin & Valerie

DONATION: $50

3 years ago

Anonymous

ANONYMOUS

DONATION: $15

3 years ago

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