BENEFITING: AMERICAN LUNG ASSOCIATION OF THE NORTHEAST
ORGANIZER: AMERICAN LUNG ASSOCIATION OF THE NORTHEAST
I am running the NYC 2017 Marathon to raise money for the American Lung Association and in particular, to honor my dad, Bill Roman, who was diagnosed with Pulmonary Fibrosis in February 2013. Pulmonary Fibrosis, quite frankly, sucks. It is a delibating disease that causes scarring around the lungs. This scarring eventually robs one's ability to breathe.
I specifcally chose the NYC Marathon because my dad received a lung transplant on June 13, 2016 at New York Presbyterian Hospital and because my dad is a native New Yorker (and lifelong Yankees fan--a love he passed along to me). Although he received a new lung, my dad still faces enormous daily challenges as he deals with several complications stemming from the transplant. He undergoes bi-monthly bronchoscopies at New York Presbyterian because of these complications. However, my family and I are incredibly grateful (and lucky) that we are able to spend more time with one another because of my dad's lung transplant. There isn't anything like preparing to say goodbye to a parent who is debilitating before your eyes. I am extremely grateful to have more time with my dad.
Although the healthcare utilization for Pulmonary Fibrosis is increasing globally, this devastating disease remains critically underfunded and underexplored. Pulmonary Fibrosis receives a fraction of the research funding that other deadly diseases, such as Cystic Fibrosis and ALS, receive. This may be due to the lack of awareness and because Pulmonary Fiborsis predominatly affects older individuals. A substantial increase in public awareness and reserach funding is necessary to address the unmet needs of this disease. While my campaign for the ALA may be a drop in the bucket, I can only hope that by your donations, we can shed light onto this disease and perhaps look forward to eradicating it in the near future.
This is my first marathon and training for it will be a challenge in of itself. That challenge, however, pales in comparison to what my dad and other Pulmonary Fibrosis diagnosees have had to face. I hope that you will join me in my goal to raise $5,000 for the ALA team. Thank you in advance for your support--it means the world to me.
Learn More about American Lung Association: American Lung Association is an organization fighting for healthy air and the millions of Americans affected by lung disease - their mission is to save lives by improving lung health and preventing lung disease through education, advocacy and research. http://www.lung.org/about-us/mission-impact-and-history/