Amy Burant wrote -
Another year has passed and I am still LIVING with this disease. I'm now on oxygen 24/7 regardless of elevation, mile high or sea level. This isn't great news but I am still ALIVE. This is my 4th year since diagnosis and I will continue to LIVE with hope for a cure THIS YEAR. There are no new medicines for me right now but there is lots of research happening for better delivery of existing medicines as well as ongoing development of new pathways to fight this disease and improve outcomes. Please consider donating to support this research and patient support. You all have been so generous and I just want you to know how much I appreciate it! I never thought I'd be fundraising for something so personal. I will not give up the PHight. Thanks for journeying with me!
Be joyful in hope, patient in affliction, faithful in prayer. Romans 12:12
In case you want more information about Pulmonary Hypertension, PHAssociation.org is the most reliable, up-to-date information. Don't Google it...it will freak you out! From PHA: Pulmonary hypertension is a rare, under-diagnosed, and often misdiagnosed disease. The disease causes high blood pressure in the pulmonary arteries. This makes it harder for the blood to flow through the lungs to pick up oxygen. This causes potentially life-threatening consequences such as right heart failure. When diagnosed in time, treatments can be administered that improve quality of life and may prolong it. At this time there is no cure; but we believe through research we will find the cure for PH.