My name is Andre Hessels. I am - amongst other things - a father, husband, guitar player and runner. The reason I started this website is that because 2 of my 3 children have a very rare genetic disease called Fanconi Anemia ('FA').
FA is a complex and chronic disorder. It will lead to bone marrow failure and patients are susceptible to develop different form of cancers, at a much higher incidence and at a much younger age than the general population. It affects their life expectancy and is therefore also a psychosocially demanding disorder.
My wife and I heard this devastating news about 2.5 years ago, shortly after our move to New York City. The news was initially overwhelming. However, thanks to the excellent patient group Fanconi Anemia Research Fund ('FARF') we quickly found out that although we are in a sad situation we are in a good place.
The FARF's mission is to find effective treatments and a cure for FA, and to provide education and support services to affeted families worlwide.
The FARF received in the last few years the highest rating in the Charity Navigator, meaning that 90 cents of the dollar are spend on FARF's mission. As FA is an orphan disease all fundraising needs to come from families affected by FA. Your donation is much more than a financial contribution: it provides hope to families affected by this terrible disease. Money will go directly to the mission of FARF, bringing us one step closer to a cure and a brighter future for patients affected with Fanconi Anemia.
CR Impact Points
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CR Impact Points
If you're seeing the grey VOTE button, you should feel great about yourself. It means you already voted for Andre this month. Come back next month and vote again if you still love Andre. Thanks to your vote, Andre earned 100 CrowdRise Impact Points (CIPs). CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.