Hello my name is Angela Bailey and my son Jamison Franks, 10, was diagnosed with juvenile dermatomyositis November 2016. Because this disease is so rare we need help to help for treatments and a cure. Jamison is currently still in active treatment. Our hope is that Jamison will some day be in remission until a cure is found. Juvenile dermatomyositis (JDM) is a rare but complex and potentially life-threatening autoimmune disease of childhood, primarily affecting proximal muscles and skin. Although the cause of JDM remains unknown it is clear that genetic and environmental influences play a role in the aetiology. In contrast to adults with dermatomyositis, children with JDM are more likely to have complications that are thought to indicate a vasculopathic process, such as severe skin disease, with ulceration or calcinosis, gut vasculopathy or central nervous system disease. New treatments are much needed and are becoming available and being tested through international multicentre trials.
Please find it in your heart to help us find a cure and consider giving any donation to "Team Jamison"
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