BENEFITING: National Fragile X Foundation
EVENT DATE: Jul 19, 2015
I am a mom of an 8-year-old little boy who has Fragile X Syndrome. His name is Angel and he has truly touched my life and everyone else he crosses paths with. He's a young boy who loves to jump, laugh, giggle, give affection, and cuddle. He also enjoys watching Veggie Tales, sleeping in, going on hikes, pancakes and his little brother Junior. He simply loves life and looks at every day with a smile. His biggest struggles are language and cognitive development. He's non-verbal but his receptive language is amazing, he can understand just about anything you say to him. Angel has many weaknesses and strengths just like any other child, however, his are a little more challenging. Angel's barriers will not hold him back from being successful in life, if anything his barriers are merely a finish line of his accomplishments. I believe in my son and I know others do too! Please come join us in our efforts to raise awareness and to raise $2000.00. Proceeds from this event will support the mission of the National Fragile X Foundation; to unite the Fragile X community to enrich lives through educational and emotional support; promote public and professional awareness; and advance research toward improved treatments and a cure for Fragile X. Fragile X awareness is most important to me because of the vision I have for my son’s future. What's most important is spreading the word of Fragile X Syndrome. I want Angel to be accepted in his community, to be valued as an individual, and to be loved as a human being. I want to spread SO MUCH awareness in my community that Angel no longer turns heads when he responds differently to a situation. I want him to be able to express himself freely without any stares, points, glares, of laughter. I want him to be free of judgements, ridicule, and bullying. I cannot do it alone. I need your help to be able to give my son the future he deserves. A future of love, acceptance, respect, compassion, understanding, and patients.
If you can't make it to our 5K Walk/Run on July 19th, no worries!! You can run or walk (bike, hop or skate, whatever you like!) the 3.1 miles (5K) all at once or over the course of a week or the entire month, anywhere, anytime! You do not have to report or verify your miles, it’s all on the honor system.
What we do want is for you to share your awareness success – while you are out, take pictures with your LEK Race shirt and share it with us through social media! Tag Me in Your Pics!!!
Registration fees are for t-shirt and race bibs only, the fees do not count towards our fundraising goal.
It isn’t about how fast you are. It’s about what you can do to raise awareness and “Let ’Em Know” about Fragile X.