BENEFITING: Children's Cardiomyopathy Foundation, Inc.
The Children's Cardiomyopathy Foundation (CCF) is a national, non-profit organization focused on pediatric cardiomyopathy, a chronic disease of the heart muscle. CCF is dedicated to accelerating the search for cures while improving diagnosis, treatment, and quality of life for children affected by cardiomyopathy. CCF actively works with federal agencies, medical societies, voluntary health organizations, and hospitals nationwide to increase awareness, accelerate research, and advance education on pediatric cardiomyopathy. The hope is that one day every affected child can be cured to live a full and active life. “A Cause for Today… A Cure for Tomorrow” ANNABELLE was diagnosed with Dilated Cardiomyopathy at 6 months old. We are very grateful she has survived the disease, is 8 years old and doing relatively well. However, she has many medical challenges with feeding, activity, GI-issues and accompanying diseases. Many children are not as fortunate as Annabelle and often pass away from this illness or require a heart transplant. The disease is incurable. Pressure on the heart can be relived through the use of medication but ultimately, a heart transplant is the only course of action when the heart fails. A transplant is not a cure and many describe it as trading one illness for another. We dedicate this fundraiser to our heart hero IVAN BURGER, age 3, who is right now fighting for his life in Milwaukee Children's Hospital. He is on life support and on his 20th day of waiting for a donor heart. His family has been through this before, as his older brother also required a heart transplant. You can watch a news segment on their family here: http://www.channel3000.com/news/3-year-old-needs-heart-transplant-for-same-condition-as-older-brother/398197576 The Children's Cardiomyopathy Foundation raises funds to provide grants to doctors and scientists to help find better treatments and hopefully a cure for this disease. Please visit their website for more information: http://www.childrenscardiomyopathy.org/index.php Thank you for considering making a donation to CCF in honor of Annabelle, Ivan and the many other heart warriors out there. Are you on your state's organ donation list? Did you know that 22 people die a day waiting for an organ? Please consider signing yourself up online for organ donation: https://organdonor.gov/index.html