BENEFITING: Children's Tumor Foundation
EVENT DATE: Mar 20, 2016
We are running with The Children's Tumor Foundation's NF Endurance Team in the 2016 United Airlines NYC Half to end NF through research.
Neurofibromatosis, or NF, encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves anywhere on or in the body, causing in moderate to severe cases disfigurement; blindness; skeletal abnormalities; dermal, brain, and spinal tumors; loss of limbs; malignancies; and learning disabilities.
NF can appear in any family. NF occurs in 1 in 3000 births; is worldwide in distribution; affects both sexes equally; and has no particular racial, geographic or ethnic distribution.
The Children's Tumor Foundation is a non-profit organization dedicated to Ending NF Through Research, and to improving the health and well-being of individuals and families affected by NF.
There is currently no effective treatments nor a cure, but you can still help by clicking on the DONATE button to contribute what you can.