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Answers for Abigail

Organized by: Cassandra Espadas

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My sister Abigail is 17 and about to be a senior in high school this year. She is a wonderful, vibrant, loving, creative person. Unfortunately, she has spent about half of the last two years at home or in the hospital due to a yet to be diagnosed medical issue. Abigail spends far too much time in the hospital; no 17 year old should know every nurse's name in the hospital and be recognized by sight.

She has been told that she has then told she does not have: Chronic Ulcers, Endometriosis, IBD, Crohns Disease, Celiac Disease, Celiac Sensitivity, Micro-inflamed Appendix, a non-functional gall bladder, and chronic pain as well as many other things.

Over the last two years she has had about 6 colonoscopies, 40-50 biopsies take (many taken over several surgeries), her appendix removed, lymph nodes removed, and more blood work than anyone can even count.

She's been tested for EVERYTHING anyone can think of. She has seen every type of doctor, and every one of her doctors has shared her case with anyone they think could help.

She is currently in constant pain. She is losing weight to the point that she has to go for weekly doctor weigh-ins and if she looses any more weight she will need a feeding tube to help supplement her. But she eats! She does not have an eating disorder (the doctors ruled that out a long time ago, she even had a 2 week observation in the hospital to prove it).

Her primary doctor wrote up her case and submitted it to the Mayo Clinic because no one has any idea what else to do for her. She has been accepted as a patient but, despite insurance, has been told to expect a total out of pocket bill of $7-10,000.

On top of those expenses from the Mayo Clinic there is the cost of travel for her and her mother to get to the Mayo Clinic and the costs for her mother to stay with her there. Additionally, while with her at the Mayo Clinic her mother will be unable to work thus further cutting into the family's funding. After speaking with other families who have been to the Mayo Clinic estimates seem to be about $2-3,000 for these expenses.

That brings the estimates cost to $9-10,000. This is a HUGE expense to undertake for anyone. While everyone in the family is contributing all that they can this is still a tremendous expense.

Abigail wants nothing more than to have an answer. Ideally she would love to find a solution that will help her get her life back. But Abigail has accepted that she may live this way forever; she simply wants to know why. The Mayo Clinic is a huge source of hope for answers for Abigail at this time.

Please help fund her Mayo Clinic treatment!


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