april white via Crowdrise
July 30, 2013
My sister and I are both carriers of FXS. We are walking/running to support my son Kaiden, my nephew Christian, and my niece Maria. These are our fragileX babies!! They have happy days and trying times. Their friends may not understand why they are different so I want to bring AWARENESS to our area and let everyone out there know about FRAGILE X SYNDROME. Please join us in this walk and help us reach our goal!! GOD BLESS!!
You can walk/run on your own time or join us for at Maury County Riverwalk in Columbia, TN at 6:00pm!
<== Slideshow! Watch the video! Take a look at the T-shirt!
To raise awareness about Fragile X! We need your help to “Let ’Em Know” and make that happen! This isn’t about how fast or slow you are, instead it’s about what you can do to raise awareness and “Let ’Em Know!” We’ve created what we think is the perfect virtual event and tips for success to help you raise awareness and money for Fragile X from anywhere in the world!
What does a virtual run/walk mean?
Basically, it means you can complete it anywhere, anytime beginning July 1 and ending on July 31, 2013. You can run or walk the 3.1 miles (5K) all at once, over the course of a week or the entire month. This is on the honor system—you do not have to report or verify your miles! All participants who register ($25 entry fee) by June 10 will receive a custom-designed, collectible athletic race shirt and (the first of many!) NFXF Let ’Em Know 5K race bib!
Not interested in running, walking or strolling but still want to participate for a chance at one of our great prizes? We have you covered! You can create a fundraising page for no cost and still be entered in the prize drawings! (Sorry, though—only run/walk entrants receive the official race shirt and bib.)
Did we mention… we have prizes?!?!
We have two Grand Prizes* this year: one for the most money raised and one for the greatest number of donations. Each winner will receive one free individual conference registration and two-night hotel expenses (room and tax) to the 14th International Fragile X Conference in Garden Grove, California (July 2014)!! (Winners not attending the conference will receive a $250 Amazon Gift Card instead.) Each individual personal fundraising page under the NFXF “Let ’Em Know” event on Crowdrise from now through July 31 will automatically be eligible to win.
Want more great news? Your fundraising efforts will be doubled!!
Thanks to a very generous one-time challenge opportunity by two very special donors, Al and Melissa Blount, every dollar you raise during the NFXF Let ’Em Know 5K event for National Fragile X Awareness month will be matched dollar for dollar!!* So for every $100 you raise, the NFXF will receive a matching $100. (And you don’t even have to double how much you run or walk!) How easy and awesome is that?!?!