Skip to content
leslieponzo's profile image - click for profile

Leslie Ponzo's Fundraiser:

Arielle's Faith Fighters

Leslie's Photo
 

LOCATION INFO
July 31, 2017

Date: Saturday November 4th Time: 10AM Where: Veterans Memorial Park, Hazlet NJ MORE INFORMATION TO COME  See more

BENEFITING: PCDH19 ALLIANCE

EVENT: Laps for Ladybugs

EVENT DATE: Nov 04, 2017

DAYS TO GO: 40

Leslie Ponzo

THE STORY:

Laps for Ladybugs is a family friendly walk taking place in multiple cities throughout the world to raise funds to support the PCDH19 Alliance and the world-class research we fund. We are relentlessly and urgently working toward a treatment for this devastating and deadly disease that starts shortly after birth and causes clusters of life threatening seizures and also leads to cognitive impairment and other damaging symptoms. We are parents, grandparents, family, friends, physicians, researchers, and medical professionals coming together to stop this disease from taking our children and this is your chance to join in our work and be a part of changing lives! Will you please help us have more HOPE?

Arielle is a joyful, loving, bright, energetic 3 year old. She had her first seizure cluster days after her first birthday and our lives have changed ever since. She has been through a lot in a short time: weeks in the ICU, EEGs, MRIs, countless blood tests. She is a fighter. Our worry never ends - when and if the next seizure will come, if she will live a life being able to accomplish hopes and dreams, if her behavior will negatively change over time, if she will continue with delayed cognitive ability. And with all that - we have hope. We have hope that Arielle's future will be bright. And hope there will be more treatment options for those suffering from intractable epilepsy. We want to help, not just because of Arielle, but because these families need us. Thankfully Arielle lives most days able to fulfill childhood memories, but others are not so blessed and bound by hospital walls.

PCDH19 is a spectrum seizure disorder. It's most common characteristic are clusters of seizures that are often difficult to control and drug resistant. Autism spectrum disorder or autistic features, behavioral problems, Aggression, ADD, ADHD, anxiety, and obsessions (OCD) are seen in many. In adolescents and adults, depression, bipolar, schizophrenia, psychosis and other mental illness have been reported. It is also estimated that about 70% of PCDH19 patients have intellectual disability of varying degrees, ranging from mild to severe. The list goes on and on.The PCDH19 Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure; providing information and support to affected families; and assisting the efforts of the medical community, so that no family suffers without a diagnosis and the most appropriate medical treatment.

REGISTER

DONATE

To This Fundraiser

$1,095

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Anonymous

    $25

  • Anonymous

    $30

  • Gong Family

    $20

  • Diana

    $100

  • Paige Stroh

    $50

  • Daniel Majka

    $20

  • Jose Briceno

     

  • Chris & Colleen Calimano

    $50

  • Roy Sandry

     

  • Sending Prayers and love your way...

    $100

  • Kim

    $100

  • Erica Lederer

    $100

  • Nicholas Dilworth

    $100

  • Deva Adapaka

    $50

  • Anonymous

    $100

  • Anonymous

    $25

  • Kam Chang

    $50

  • Michael Acierno

    $100

  •  
  •  
  •  
 

22% Raised of $5,000 Goal

The Team: $1,095 TOTAL RAISED SO FAR

Fundraiser Title

Leslie Ponzo

Amount Raised

$1,065

 

21% Raised of $5,000 Goal

Fundraiser Title

Steve Prologo

Amount Raised

$30

Donor Comments

Michael Acierno

Michael Acierno

DONATION: $100

Happy to help this cause and your daughter. My entire family supports this too. All the best wishes to you and your family 4 days ago

Kam Chang

Kam Chang

DONATION: $50

3 weeks ago

Anonymous

ANONYMOUS

DONATION: $25

1 month ago

Anonymous

ANONYMOUS

DONATION: $100

1 month ago

Deva Adapaka

Deva Adapaka

DONATION: $50

All the best! 1 month ago

Nicholas Dilworth

Nicholas Dilworth

DONATION: $100

Delta Nu 1 month ago

Erica Lederer

Erica Lederer

DONATION: $100

2 months ago

Kim

Kim

DONATION: $100

2 months ago

Sending Prayers and love your way...

Sending Prayers and love your way...

DONATION: $100

2 months ago

Roy Sandry

Roy Sandry

2 months ago