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Jenna Manson's Fundraiser:

Art Gallery for my Brother

Jenna's Photo
Jenna's Photo
Jenna's Photo
Jenna's Photo
Jenna's Photo
Jenna's Photo
Jenna's Photo
Jenna's Photo
Jenna's Photo

BENEFITING: CURE CMD

Jenna Manson

THE STORY:

My brother, Ethan, who is six years old, has an undiagnosed congenital muscle disease. My brother has a hard time doing stuff other kids can do. He would love to play hockey but he can't. He gets so tired and frustrated lots and I know it makes him sad. He tries so hard at everything he does and I am proud of him. I have watched my parents worry about my brother and take him to so many doctors. Our friends, helped my brother and I, paint some art pieces that we have displayed and are going to try and sell. We are going to donate this money to Cure CMD to help find a cure!!! Jenna

CMD Info:

"A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older.

Cure CMD is the only non-profit focused solely upon finding treatments, improving the medical management and raising awareness for the CMDs.  Every dollar that is contributed truly makes a difference in funding research and studies, and your contribution will be a big part of our initiatives this year.


The good news: in the last year Cure CMD has fielded an increasing number of calls from the pharmaceutical and venture capital sector who are interested in the CMDs.  Ultra-orphan diseases are coming into the limelight; however it will take all of our individual efforts to push these initiatives forward. 
 

Simply put: we will not stop until we identify interventions and treatments that improve the health and survival of those with CMD.  Thank you for supporting our children"

- EIN: 26-2640975 • curecmd.org

DONATE

To This Fundraiser

$3,640

MONEY RAISED
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  • Ben and Nancy Fullerton

    $20

  • Charlene Clasen

    $20

  • John and Denise Doiron

    $20

  • Alexis Peters

    $20

  • Amber keith

    $20

  • Jeannine and James Wilmot

    $30

  • 35

    $25

  • June

    $20

  • Mark Drewniak

    $20

  • Kathie Gerrard

    $20

  • L & R Rostecki

    $25

  • Marc and Colleen Pittet

    $25

  • Susan Beck

    $20

  • Cindy Baraniuk

    $20

  • Amia Weselake

    $25

  • Georgie and Ian Manson

    $70

  • Lise Gendron

    $40

  • Shaun and Angela P

    $37

  • Greg Manson

    $40

  • Gloria Manson & Robert Paiero

    $50

  • Joanne and Paul Pelletier

    $20

  • Addy Gendron and Anneli Epp

    $120

  • Shelley R

    $20

  • Tracy Jackman

    $20

  • Rob Zitzelsberger

    $40

  • Dana Bartley and Peter Foulidis

    $25

  • Del M and Brian A

    $50

  • Barb Lagimodiere

    $25

  • Theresa Placktis

    $25

  • Kevin Wery

    $25

  • Barb Moore

    $20

  • Charles Placktis

    $25

  • Sandy and Dave Williamson

    $50

  • Lisa & John Colburn

    $30

  • Jon Hendricks

    $20

  • Micheline Girouard

    $25

  • Simone and John

    $30

  • Emilie Szczepanaik

    $20

  • Maddy Szumlak

    $100

  • Pat and Jim Mayson

    $20

  • Cristien Lyons

    $20

  • Holly & Aaron Cook

    $25

  • Diane Jandrasics

    $20

  • Anonymous

    $10

  • Rick and Gail Thompson MB

    $25

  • Craig & Shelley Bryan

    $25

  • Calla and Maya Lucas

    $20

  • Sheryl Weselake

     

  • Janice Jackson

    $25

  • Izzy and Carter McCluskey

    $50

  • Gail and Brent Grywinski

    $40

  • Lori Dufault

    $20

  • Sylvia Cadieux

     

  • Mary Ann King

    $20

  • Anonymous

    $20

  • Anonymous

    $25

  • Nicole and Ron Chapellaz

    $50

  • Laurie Fotty

    $100

  • Tina and Ian Zimmerman

    $50

  • Anonymous

    $30

  • Rod Stephanchew

    $20

  • Lionel and Pauline Forest

    $40

  • Gene&Gloria; Charney

    $25

  • Chris Gonske

    $100

  • Rachel Ganaden

    $25

  • Eileen Hamrlik

    $30

  • Ralph MacKelvie

    $20

  • Louise

    $20

  • Denise Paillé-Jones

    $25

  • Roy and Louise Payne

    $20

  • McGurrys

    $30

  • Shannon Gibson

    $20

  • Danielle Cormier

    $25

  • The McConnells

    $50

  • Dean Barth

    $50

  • Bea Coulombe

    $20

  • Hub & joan Chaput

    $25

  • Verzyl

    $20

  • Nicolas & Noah Laplume

    $25

  • Len and Pauline F

    $48

  • Jenny and Roger F

    $40

  • Sandy Birley

    $25

  • Sherene,Kaylin and Averie

    $20

  • Diane Boyd

    $20

  • LK

    $50

  • Jacquie Meyer

    $20

  • Diane Sadler

    $15

  • Oma (Rachel)

    $20

  • The Roth's

    $55

  • Ace Burpee

    $40

  • Dr K

    $20

  • Gloria Manson & Robert Paiero

    $50

  • Diane

    $50

  • adelard gendron

    $100

  • Deborah Kernested

    $100

  • Theresa Phalen

    $20

  • Paz-Andrea Soriano

     

  • Lynne Bailey

     

  • Sharon & Bruce Harrald

    $50

  • Robin Swallow

    $25

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1820% Raised of $200 Goal

Donor Comments

Robin Swallow

Robin Swallow

DONATION: $25

For my two grandsons, who also have a CMD 8 months ago

Sharon & Bruce Harrald

Sharon & Bruce Harrald

DONATION: $50

You have such beautiful caring children. staystrong#19 8 months ago

Lynne Bailey

Lynne Bailey

I am Jon Montgomery's auntie and I read about your story after hearing of Jon's visit with you. I love your art wall. It looks amazing! 1 year ago

Paz-Andrea Soriano

Paz-Andrea Soriano

1 year ago

Theresa Phalen

Theresa Phalen

DONATION: $20

1 year ago

Deborah Kernested

Deborah Kernested

DONATION: $100

2 years ago

adelard gendron

adelard gendron

DONATION: $100

3 years ago

Diane

Diane

DONATION: $50

3 years ago

Gloria Manson & Robert Paiero

Gloria Manson & Robert Paiero

DONATION: $50

All our love. Miss you all everyday. Love, hugs & kisses, Auntie Gloria & Rob OXOXO 3 years ago

Dr K

Dr K

DONATION: $20

3 years ago