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ARTHROGRYPOSIS MULTIPLEX CONGENITASUPPORT's Fundraiser:

Arthrogryposis (AMC) Awareness Day

ARTHROGRYPOSIS MULTIPLEX CONGENITASUPPORT's Photo

THE STORY:

National Support Group for Arthrogryposis Celebrates the 7th Annual Awareness Day Wear BLUE in honor of all our AMCers! Families from all over the world have been sporting the color blue to honor those affected by Arthrogryposis Multiplex Congenita (AMC). June 30th, 2016 will be the 7th annual AMC Awareness Day sponsored by Arthrogryposis Multplex Congenita Support Inc. (AMCSI). We have had billboards, States officially recognizing June 30th as arthrogryposis Awareness day, TV commercials, newspaper articles and so on! Keep up the GREAT WORK! ARTHROGRYPOSIS Awareness is happening!! AMCSI is a fully volunteer based 501(c)(3) nonprofit organization that hosts yearly conferences and maintains a free online message board system. Quick Facts About Arthrogryposis Multiplex Congenita Arthrogryposis is defined as multiple congenital (from birth) joint contracture or multiple joints that are stuck in one position and have very little flexibility. A newborn has to have 3 contracted joints in two different body areas to have a diagnosis of Arthrogryposis. Arthrogryposis is an umbrella diagnosis with many syndromes and subtypes and occurs 1 in 3,000 live births. There are currently 400 identified types such as Amyoplasia, Distal and Multiple Pterygium/Escobar Syndrome. Arthrogryposis is caused by an unborn baby not moving properly during fetal development. A baby has to move its limbs for proper joint development to happen. Why a baby fails to move its joints depends on the type of AMC. For example, In Amyoplasia (a non-genetic type), it’s because the muscles fail to develop. In Multiple Pterygium/ Escobar Syndrome (a genetic type) the messages that impact a person's muscle movement is affected; the message isn't able to get through very well making it more difficult for them to move. Stretching, various therapies (physical, occupational, speech etc.) and some surgical interventions can help improve someone’s independence level and quality of life. Questions regarding the support group or to request more information about Arthrogryposis should be directed to the organization’s Board of Directors by emailing bod@amcsupport.org. (RP) ######### Join us! There is NO WHERE TO SHOW UP! This event will take place all over the world! ALL YOU HAVE TO DO is Wear your favorite AMC Awareness shirt or anything BLUE to raise awareness for Arthrogryposis! Share your photos by hashtagging ‪#‎BLUEforAMC‬

DONATE

To This Fundraiser

$425

MONEY RAISED
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  • Lauren Nieradka

    $50

  • Mary Balistreri & Steve Thompson

    $100

  • The Jarsky Family

     

  • Ewa

    $25

  • The Lawson Family

    $100

  • Andrea G.

    $50

  • Ben and Janet

    $50

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9% Raised of $5,000 Goal

Fundraise for this Campaign

The Team: $425 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Ben and Janet

Ben and Janet

DONATION: $50

In honor of Lexi! 4 months ago

Andrea G.

Andrea G.

DONATION: $50

In honor of Lexi! 4 months ago

The Lawson Family

The Lawson Family

DONATION: $100

For my nephew William Gephardt who was born with Arthrogryposis. 4 months ago

Ewa

Ewa

DONATION: $25

11 months ago

The Jarsky Family

The Jarsky Family

1 year ago

Mary Balistreri & Steve Thompson

Mary Balistreri & Steve Thompson

DONATION: $100

All in for Owen Thompson 1 year ago

Lauren Nieradka

Lauren Nieradka

DONATION: $50

For Mikayla A. 1 year ago