BENEFITING: International KS Foundation (GeneSpark)
One of our dear friends has a 4 year old son that was diagnosed with Kleefstra Syndrome about 2 years ago. Kleefstra Syndrome is rare and difficult syndrome that deals lifelong intellectual disabilities, as well as speech impairments and various other neurological/mental and physical abnormalities (including heart defects, kidney/urological defects, respiratory infections and seizures). There are no known cases of KS kids or adults living independently – all require lifelong care and cannot function in simple tasks we often take for granted. This fundraiser is close to us personally and any support you can provide would be greatly appreciated.