Autoimmune/lupus/fibromyalgia/raynauds has hit our family.
Organized by: Allegra Crist
My Mom, Kimberly wood, has worked 25 years as a respiratory therapist and absolutely loved what she did. She loves taking care of people and doing for them. She was always involved in our education, extracurricular activities, community fund-raising and volunteering.
Then after months of extreme fatigue, that wouldn't go away with sleep, and all over pain she went to her primary care provider and monyhs/years of more testing and treatments, she was diagnosed with autioimmune disease, lupus, fibromyalgia, rynauds, arthritis, GERD and SVT (dangerously high heart rate). She was diagnosed around 1993 with fibromyalgia, the first time but it was mild and until 2013 when all the rest was diagnosed. She also now see's several speciality doctors including rheumatologist, cardiologist, gastrointestinal and neurologist. Although it's not curable,you treat each new symptom. Risk of heart attack, stroke or kidney disease are all increased.
My mom's quality of life has been dramatically reduced..... Physically, emotionally, financially and socially. She hasn't worked since September 2013 and has applied for permanent disability. Her lawyer said realistically, it will be 12 to 18 more months longer to get approved. Our social security system is so backed up, this wait (of over 2 years so far and another year to go) has been financially devastating. Losing a full-time income and expenses keep increasing, just in co-pays and medications alone!
When my mom became ill and had to stop working, both my mom and step-dad drained their retirements, cut out all extras from our budgets and sold as much household extras as we could. But we are still struggling and no relief anywhere in the near future. I'm a second year full time student at Alfred University and I work 32 hours a week to help our family as much as I can and pay my own college expenses.
It's very humbling to ask for help, but it's even harder to watch your family suffer. I can't fix her disease, but I'm hoping I can help with the financial side of things, with this. I know by relieving some of her financial burden, it will also help relieve some of her physical suffering too. Any donations will help, as would sharing this with as many people as you can. My family and I thank you for reading, caring, sharing and/or donations.