Ava A's Fund
Organized by: Joy Delp
Joy Delp via Crowdrise
February 26, 2015
Our darling Ava was diagnosed with acute lymphoblastic leukemia on Sept 9. Her parents Pam and Matt said she had on and off fevers for a few weeks prior to her diagnosis. You can imagine the shock when told by the pediatrician to go immediately to Hershey Children’s Hospital for further testing and ultimately get the leukemia diagnosis.
At 4 years old Ava has been incredibly brave through it all. She’s had surgery several times, for bone marrow aspiration, PICC lines, port insertion and several (and continuing) spinal taps for chemotherapy. The team at Hershey Children’s Hospital - nurses, doctors, social workers, and volunteers have been nothing short of amazing. They’ve seen Ava through it all - and all comment on her cheeriness, her humor and her politeness.
She’s currently in Phase 2 and has been slowly losing her hair. We’ve been hopeful at seeing Ava’s blood counts improve and fewer blood transfusions necessary. She still is at risk for infection, especially during cold and flu season, and has had a couple trips to the emergency room for fevers.
We created this crowd funding page in the hopes to alleviate some of the mounting costs to continue Ava’s treatment. Her family is doing their best to care for her as well as their 7-yr old autistic son Matthew and newborn Sophie, while Ava’s dad has to miss some work to take them to the hospital for weekly treatments.
If it’s within your means, please consider making a donation. Any amount is appreciated and makes a difference. All funds raised go directly to Ava’s family. You may consider donating blood to a local blood drive as well. With your love and support, we are hopeful for Ava’s treatment and her survival of this disease.
Thank you for your help.
Happy New Year! Ava has been doing well in her treatments at the clinic at Hershey Children's Hospital. Each phase of treatment can be very different as the medications and frequency of visits change. As we move further into cold and flu season, her family is extra cautious about exposing her to germs because her immune system is still very weak. Hopefully gone are the days of trips to the ER with a fever of 100.5 or higher. A simple head cold to us can easily turn into pneumonia to Ava.
When out in public she wears a HEPA mask, which is bothersome but she wears it without much complaint because she knows it helps to keep her healthy.
The medicines for her treatments range from strong antibiotics to meds to protect her stomach lining to steroids to chemotherapy. She's monitored for any reactions and the doctors confer and change her treatment as needed.
As she moves into the next phase (4th) this month she'll receive 3 new chemo meds. She'll also return to a steroid that causes her to crave food 24 hours a day and to bloat. A constant med helps with constipation.
We are amazed by her outer and inner strength to endure these treatments. She's naturally a cheery and caring person and even after a terrible clinic visit, she bounces back the next day with incredible resilience. It's quite something to witness. Children have such incredible open minds and trust that we adults can pay mind to learn from them.
Your prayers and support mean a great deal to us and Ava is reminded and grateful that so many people care and are rooting for her. Her dad misses work on hospital visit days because Ava requests his presence at the sometimes 9-hr long visits. Your monetary support truly makes an incredible difference to keep her spirits up.
We're only 5 months in of a 24-36 month treatment for ALL. We're happy to ring in 2015 and hope that she can continue her treatment throughout the year and next with your continued support.
Thank you so much. May you and your loved ones be in good health and love!
Please continue to send prayers and good thoughts for Ava while she undergoes her current "Delayed Intensification" phase of treatment. This phase caused her hair to fall out very quickly, her blood count numbers to tank and fevers to come back because the treatment consists of powerful drugs alternating with rest while she recovers. She was checked in to the ER last night, but is in good spirits and handling it like a champ!
She misses her big brother while he stays with his grandparents when they went to the hospital last night, but she looks forward to feeling better and seeing him soon.
Your love and support mean so much. Please donate and share this page if you'd like. Her entire family needs your prayers and good thoughts - Pam, Matt, Matthew, Ava and little Sophie who just started crawling and has spent 6 of her 8 months of life supporting her big sister at every single doctor visit Ava has had.
Many many thanks!