Avery Engelman- myjourney2breathe
Organized by: Avery Engelman
My name is Avery and I am a 17 yr old girl who suffers from Cystic Fibrosis. CF is a life-threatning, genetic disorder that causes the body to produce large amounts of mucus that mainly affects the lungs and pancreas, but in fact, affect many other organs too. In the lungs, mucus clogs the airways and traps bacteria that leads to infections that damage the lungs. This leads to respiratory failure and what is called end-stage lung disease. I am currently in end-stage lung disease now.
Due to my condition, I am in desperate need of a bilateral double lung transplant. I have had to temporarily relocate to St Louis, MO from Florida, where I have had to leave my family and friends behind.
The reason why I am setting up this fund is to help my dad with all the medical bills, moving expenses, and the cost of my surgery. Just my transplant alone costs over 1 million dollars. Even though insurance covers a lot, it does not cover all of the expenses. Any amount helps alleviate the financial pressure that my dad has been burdened with, who has had to stop working to take care of me full time. Many people ask how they can best help me or what they can do for me, and my answer to that is: I would rather people donate whatever amount they chose to, to this fund than buy me any gift because the gift of life is more important to me than any gift that could be purchased. Any amount helps, it all adds up in the end. The donations can be made anonymously or not, I am very appreciative of any and all.
Whatever money is donated not only goes towards my current transplant, but all future medical bills. Most people think that I get a transplant and I will be completely healthy for the rest of my life, but that is not the case. I will have to take 40-60 pills everyday for the rest of my life to suppress my immune system and prevent rejection of my lungs. Eventually, but hopefully not, my lungs will reject and I will get very very sick again and need another double lung transplant to survive.
I am beyond thankful for all the love and support everyone has shown me, and I look forward to the day that I can actually just breathe. Follow along with my journey on Facebook and Instagram @myjourney2breathe