Organized by: Tracy Wood
My name is Tracy. I am a 29 year old mother of three who every day battles against a nameless monster. In December of 2012, I became very ill. After three months and a lymph node biopsy, my illness was brushed off as an extremely rare, but self-limiting disease that was expected to right itself and never return. In March of 2015, I once again became ill, plagued by sporadic fevers, debilitating fatigue and severe joint pain. Over the last 18 months, I have been examined by a dozen different specialists, none of whom have been able to figure out the cause. My illness has shared similar symptoms and mimicked diseases like lupus and MS, and has since progressed to attacking the muscles in my legs, causing severe spasms and cramps and leaving me at the mercy of a walking cane inside my home and a wheelchair if I need to go out. My illness has forced me to resign from my job and put my two year old in daycare because most days I am not well enough to keep up with him. I applied to the Undiagnosed Diseases Network, which takes 6-8 weeks to receive an answer once they receive all your medical records. The records I mailed have been "misplaced" by the post office, which delays my answer further, even though I am not considered a top priority applicant. Without a diagnosis, my doctor is struggling to find any treatment options. I have been told that for a hefty price, I can have exome sequencing done that may provide insights to the cause of my illness. I just need answers, a diagnosis to point me in the right direction, anything that could start my path to recovery.