Baby Cathryn Bay's Craniosynostosis
Team Member: Christine DeBenedetto
Friends & Family wrote -
On April 4, 2014, the state of NY was made a little brighter with the birth of Cathryn Bay, born to Jen and Eddie Aulino.
Cathryn is a beautiful baby girl, who at her 2 month visit exhibited signs of a very small soft spot. By 4 months it was confirmed through a cat scan that she has Craniosynostosis.
Craniosynostosis is a rare congenital birth defect that causes one or more skull sutures to close earlier than normal. Cathryn has both coronal sutures fused, which is called bicoronal. As her brain growns, her skull shape will begin to change to be noticably different. If left untreated, craniosynostosis can cause
increased intracranial pressure, seizures, visual abnormalities, skull deformity & developmental delays. The only way to correct this is through reconstructive surgery of removing her skull and remodeling it.
What lies ahead for the family is a long process of many doctor visits, highly invasive surgery and and a lengthy recovery. Cathryn's craniosynostis diagnosis is not only emotionally and mentally overwhelming for the family- the out of pocket costs of this long and challenging process are unbearable. The expenses associated with receiving the necessary treatments, surgery, travel expenses, medical costs, recovery care and costs not covered by insurance are overwhelming. Estimated costs of surgery may cost over $50,000.00.
Jen and Eddie are lifelong residents of Lindenhurst, NY who are devoted parents to three other boys- all doting, protective big brothers two in Middle School and one in West Gates Elementary.
Jen has given so much of herself to selflessly helping others. As co-founder of the non-profit Adopt A House, she helped hundreds of families in the 22 months following SuperStorm Sandy. She relentlessly worked around the clock to get funding and resources to Sandy affected residents- changing the lives of many.
And now it's our chance to give back to an extraordinary individual, family and beautiful little girl.
No parent should have to endure heartbreak like this. While none of us can take their pain or worry away, we can lessen their burden of worrying about the financial end of it.
Please consider donating so Cathryn can receive all the treatments she needs. Every little bit helps and I know together we can ease the financial burden for such a deserving, brave family and a special little girl. Please share with friends and family or on Facebook so we can rally around Jen, Eddie, Cathryn and the family.
There are no words to express the deep gratitude to anyone who opens their heart and their wallet for this family- it truly does take a village. “There is nothing more beautiful than someone who goes out of their way to make life beautiful for others.” -Mandy Hale
If you would like to donate directly, please send a check payable to:
Cathryn Aulino 44 Liberty Ave Lindenhurst, NY 11757
For more information on Cathryn's Condition you can follow her on facebook.
Group page: Our Girl: Cathryn Bay's Craniosynostosis Jouney