BENEFITING: ADOPT A HOUSE
On April 4, 2014, the state of NY was made a little brighter with the birth of Cathryn Bay Aulino. She is a beautiful baby girl, who at her 2 month visit exhibited signs of a very small soft spot. By 4 months it was confirmed through a cat scan that she has Craniosynostosis.
Craniosynostosis is a congenital birth defect that causes one or more skull sutures to close earlier than normal. Cathryn has both coronal sutures fused, which is called bicoronal. As her brain growns, her skull shape will begin to change to be noticably different. If left untreated, craniosynostosis can cause increased intracranial pressure, seizures, visual abnormalities, skull deformity & developmental delays. The only way to correct this is through reconstructive surgery of removing her skull and remodeling it.
What lies ahead for the family is a long process of many doctor visits, highly invasive surgery and and a lengthy recovery. Cathryn's craniosynostis diagnosis is not only emotionally and mentally overwhelming for the family- the out of pocket costs are unbearable: the expenses associated with receiving the necessary treatments, surgery, travel to visit specialists, recovery care and medical costs not covered by insurance. While Baby Cathryn will need three surgeries, the estimated costs of ONE surgery may cost over $100,000.00. The family is trying to sell all of their belongings but it is just not enough.
Jen and Eddie Aulino are lifelong residents of Lindenhurst, NY who are devoted parents to three boys- all doting, protective big brothers.
For more information on Cathryn's Condition you can follow her on facebook.
Group page: Our Girl: Cathryn Bay's Craniosynostosis Jouney
If you would like to send an offline donation:
Address: 44 Liberty Ave, Lindenhurst, NY, 11757
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