Baby Noah's Helmet to Cure Plagiocephaly
Organized by: Abigail M Perez Fred J Solis
Dear Friends and Family, As some of you may know, Noah Xander was born on July 4th, 2015, at exactly 33 weeks. He spent approximately a month and a half in the neonatal intensive-care unit (NICU). This experience was very emotional and at times distressing for everyone in our family. Once he was discharged the only worry the doctors had was his weight gain. Fortunately he has not had any complications involving his weight, but other medical issues arose. We began noticing his head shape looked a little odd and his motor skills were not where they should be.
On November 2nd, Noah had his four month check up and was diagnosed with Plagiocephaly and Brachycephaly. Because of this condition the doctors also explained that Noah was going to need to wear a DOC band (helmet) and require physical therapy to help with the Torticollis. Shortly after the doctor diagnosed Noah, I broke down into tears. I immediately began blaming myself and asking what I did wrong and what should I have done differently in my pregnancy. She quickly explained that I had done nothing wrong and it is very common in premature babies. Plagiocephaly occurs when there are one or more areas of flatness on the baby's head. Usually there are slopes in the forehead, parts of the head are bulging out, and shifting of the ears may occur. Once the doctor explained more about the helmet and how it will help improve his head, neck, and motor skills I felt relief and comfort. That was until they told us about the cost of the helmet. The DOC band runs anywhere from $1,600-$2,000+. Unfortunately Noah's medical insurance does not cover any of the costs because they view it as being "cosmetic" and not reconstructive.
My family and I please ask for any donations to help baby Noah. Your support and prayers will go a long way with curing his condition. He has been through quite a journey in his four months of life and we are hoping that you and your family could also be apart of it with any help you can provide. Thank you so much in advance and we appreciate you taking the time in reading this.