BENEFITING: Cornelia de Lange Syndrome Foundation, Inc.
As many of you are aware, I have been tirelessly advocating for Frankie as well as the CdLS Foundation through countless physical endeavors. This year I have decided to embark on the journey to complete two marathons for this great organization. The first being the Baltimore Running Festival on October 18th, 2014 and the second the TCS NYC Marathon on November 2nd, 2014.
Frankie recently turned 21, and is continuously striving against the odds we were given at birth. He is in the process of moving closer to home, in an adult residence program in Cortland Manor, NY.
Frankie is not yet walking independently and continues to require assistance with all aspects of daily living; however, each time I see him, he inspires me to push myself a little harder and a little further than I would normally.
I am asking that you help me give back to the Foundation and help me raise money to provide the essential resources and support to other families and providers who are impacted by CdLS.
Thank you for visiting my fundraising page!
Thank you in advance for your support, and do not forget to forward this link to anyone who you think might want to donate too. https://www.crowdrise.com/BaltimoreNYC2014/fundraiser/sueleone