Barbara lost her courageous battle with Multiple System Atrophy (MSA) on April 6, 2016. She was surrounded by her family, a testament to the place she held in all our hearts. Those of us left behind hope that no one has to suffer the devastating and swift decline that is a hallmark of MSA. We hope you will join the fight against MSA by donating to this fund, which supports the work of the Multiple System Atrophy Coalition. Your donations in Barbara's memory will help fund research to discover a cure for this devastating disease.
MSA is a rare, degenerative neurologic condition that affects both men and women, usually starting in their 50s or early 60s. It is a type of parkinsonism but with more widespread effects on the brain and body than Parkinson's disease. The causes of MSA are unclear and there are no known risk factors. The prognosis for this disease is poor with most patients passing away from its complications around nine years after diagnosis. At this time, there are no specific symptoms, blood tests, or imaging studies that definitively diagnose MSA and there is no cure. Despite the diagnostic challenge, recent research has yielded promising results that may help unravel the causes, detection, and future treatment of MSA.
The MSA Coalition is focused on facilitating and funding MSA research. Approximately 75% of all donations to the MSA Coalition go into a dedicated MSA Research Fund. The MSA Coalition also supports important educational and advocacy initiatives.