BENEFITING: EB Research Partnership
EVENT DATE: Jun 18, 2016
When the opportunity for community service came up through a school function, I immediately knew that I wanted to put together a race in an effort to raise money for EB Research. My cousin Shane suffers the effects of EB everyday, and they are unimaginable. This fundraiser was put together in the hopes of raising money to put towards the development of new technologies to possibly reduce the effects of EB, or someday even cure the disease all together. This fundraiser is not only about raising money for EB Research, in hopes to one day find a cure; but, it was also put together to raise awareness for EB. I began noticing a few years back that not many people actually have a deep understanding of what EB is, and I wanted to change this by raising awareness for the cause. Please consider donating to help find a cure for EB, and thank you in advance for your generosity.