BASAL CELL CARCINOMA NEVUS SYNDROME LIFE...
Tax ID: 34-1915691
BASED: Burton, OH, United States
CHARITY WEBSITE: www.BCCNS.org
BASAL CELL CARCINOMA NEVUS S...
Life Support Network
BCCNS Life Support Network strives to unite and support those people manifesting the signs and symptoms of the genetic disorder known as Basal Cell Carcinoma Nevus Syndrome (BCCNS), also known as Nevoid Basal Cell Carcinoma Syndrome (NBCCS), Gorlin Syndrome, and Gorlin-Goltz Syndrome.
To provide health care, counseling, compassion and support services to children and adults manifesting the inherited genetic disorder most commonly known as Basal Cell Carcinoma Nevus Syndrome (BCCNS), with particular focus on early diagnosis and treatment for children evidencing the initial onset of BCCNS.
To develop information about the medical conditions and disorders experienced... by those living with BCCNS; to share this information with clinics and health care providers treating patients with BCCNS and other similar disorders; and to undertake a collaborative approach to the diagnosis, treatment, prevention, and cure of the disorders encompassed by BCCNS.
To provide a supportive environment for families to seek treatment for their children and other family members, and to train physicians, nurses, and other healthcare providers to communicate more effectively with BCCNS patients and their families, as well as other similarly affected populations.
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