Beanie Feldstein via Crowdrise
December 20, 2010
BENEFITING: CHARLEYS FUND INC
Charley’s devilish smile belies what is going on inside his body, for his muscles are deteriorating at an alarming pace. Unless a cure or treatment for Duchenne Muscular Dystrophy is found, Charley will lose his ability to walk by adolescence, and subsequently lose all muscle function. Like all boys with Duchenne, he will die from respiratory or heart failure in his late teens or early twenties.
Charley's Fund directs money into the hands of researchers who have the best shot at developing a treatment or cure for Duchenne Muscular Dystrophy. Their goal is to cure DMD in time to save Charley’s life and the lives of thousands of boys like him.
Historically, most of the funds raised for Duchenne have subsidized the tremendous cost of caring for children with this brutal disease, not research to cure it. Several established organizations provide helpful services for families struggling to provide for their DMD-afflicted children. In contrast, our sole mission is to fund a cure or treatment for Duchenne. We invest our money in translational research – research that focuses on moving science from the lab into human clinical trials.