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Mark Beare's Fundraiser:

Beare It For Bella

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Mark's Photo
Mark's Photo
 

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November 24, 2016

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BENEFITING: CURE CMD

EVENT DATE: Sep 11, 2016

Mark Beare

THE STORY:

My name is Mark and my wife Jessica and I need your help. Our daughter Bella was born with a very rare form of muscular dystrophy called Merosin Deficient Congenital Muscular Dystrophy. Simply put this means that her muscles do not form properly and she has very low strength. She will likely never walk and need assistance for the rest of her life doing things that many of us take for granted day to day. Bella is a happy, vibrant and otherwise normal little kid who loves Curious George, bubbles and hot chocolates. As her parents Jess and I have to carry Bella everywhere because she cannot stand or walk. Even when we sit her somewhere we need to make sure she is surrounded by pillows to make sure that if she falls over she doesn't hurt herself.

There is no known cure for Bella's form of Muscular Dystrophy but we have hope that one can be found. This is why we are trying to raise money to go towards CureCMD, an organization set out to find a cure for all types of genetic Muscular Dystrophys.

 

On September 11 I will be doing the Half Ironman Triathlon in Santa Cruz, California and will be wearing Bella's body weight in the form of a weight vest through the race. During the swim I won't be wearing the weight vest (was not allowed to) so instead I will not be wearing a wetsuit and I will instead wear your messages on my body so please leave a message with your donation!

DONATE

To This Fundraiser

$29,538

MONEY RAISED
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  • Bauers

    $50

  • Larry & Marie Rawlins

    $50

  • Georgie

    $50

  • Ryan, Gina and Leo Ellis

     

  • Tom Reid

    $250

  • Anonymous

     

  • Max N

    $80

  • Katie Allen Devney

     

  • Matt & Agnes Caron

    $25

  • Jack Askew

    $25

  • Alexandr Berezhnoy

    $25

  • Casey

    $25

  • Laura Koetter

    $50

  • Kevin Turner

    $100

  • The Slivkas

     

  • JRP

    $25

  • Taryn, Brian, Finley and Maddox Wardwell

    $100

  • Vitalii & Jenny Starostin

    $100

  • Barbara K. Marsh-Wetherell

    $50

  • Anonymous

    $90

  • Linda and Peter Aitchison

    $100

  • Julie Stembridge

    $50

  • Jim and Sally Becker

    $100

  • Charles Stembridge

     

  • Ben, Erika & Kingston

    $100

  • Aayushi and Tanmay

    $40

  • Arya, Anjali & Girish Aakalu

     

  • Sylvia Maresca

     

  • Katie Donovan & Ryan Ventura

    $50

  • Fern and Don Prosnitz

    $125

  • Vyggers

     

  • Larissa Brewer and Family

    $25

  • Eileen Czesak

    $25

  • Kitty and Pete, Maria and Frank, Andrew and Sarah

    $100

  • Matt Quirie

    $100

  • Shannon & Ted Meeder

    $100

  • Shannon & Ted

    $250

  • Chelsea Perahia

    $25

  • Michelle & Craig Blumenthal

    $25

  • Caroline de Witte

    $25

  • Anne Scher

    $25

  • John, Christian, and Piper

    $200

  • JRP

    $50

  • Yoshioka Family

    $100

  • Lynn Donovan

    $250

  • Mel, Luke & Josh

    $100

  • Helen & David Woodall

     

  • Jo Ottaway and David Grosshans

    $50

  • The Bishops

    $40

  • Bonnie Nicholls

    $25

  • Sydney and lily nash

    $25

  • Pania, Bret, Ollie & Poppy

    $20

  • Ben & Tammy Atkins

    $100

  • Kim, Andrea, Marty & Megan

     

  • Melanie Frediani-Frazier

    $25

  • Jenelle Andersen

    $75

  • The Shermans

    $50

  • Kristen and Roger Smidstra

    $50

  • The Dunton's

    $100

  • Gary Wardwell

    $50

  • Jake Adkins

     

  • Woz & Mez Frost

    $50

  • Anonymous

    $50

  • Bhana Grover

     

  • Tim Growden

    $100

  • Shannon, Justin & Lucas Baker

    $100

  • Lisa Splitter

    $20

  • Pete and Erin

    $50

  • Deb Naguwa

    $50

  • Cibich Family

    $100

  • Vero Lauriault

    $50

  • Lauren Powe

    $50

  • Grandpa, Grams and Auntie Jordyn

     

  • Simon and Carli

    $100

  • Brad O

    $50

  • Abel, Allyson & Audrey

    $25

  • Finley Sanchez

     

  • Auntie Karen Day (Lorien's Aunt)

    $100

  • Anonymous

    $25

  • Paul Mondo

    $100

  • Joel and Tessa

    $100

  • Paul and Ilona Kinney

    $50

  • Kathryn and Ollie

    $50

  • Victoria Liu, Ironhorse PT

    $50

  • Matthew Glenn

    $50

  • Keiron McCammon

    $50

  • Bruce and Karen Cousins

    $50

  • Albert Dyrness (Team Kinney Multisport)

    $250

  • Anonymous

     

  • Kristin Brekke Indorato

    $25

  • Kim Maples

    $25

  • Anonymous

    $25

  • tbones15

    $50

  • Winter, Shelby, and Jason Urnberg

    $25

  • Jenkins

    $100

  • Artem Dolotov

    $300

  • Kelley & Katie

    $25

  • Anton

    $50

  • The Peterson's

    $50

  • Edwards Family

    $50

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591% Raised of $5,000 Goal

Fundraise for this Campaign

The Team: $29,538 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Mark Beare

Amount Raised

$29,423

 

588% Raised of $5,000 Goal

Donor Comments

Edwards Family

Edwards Family

DONATION: $50

Happy Birthday Bella! We are so happy to be your neighbors and watch you grow up. 2 months ago

The Peterson's

The Peterson's

DONATION: $50

5 months ago

Anton

Anton

DONATION: $50

6 months ago

Kelley & Katie

Kelley & Katie

DONATION: $25

You have touched out hearts in the short time we have known you, sweet Bella!! Can't wait to make more fun memories with you! 8 months ago

Artem Dolotov

Artem Dolotov

DONATION: $300

1 year ago

Jenkins

Jenkins

DONATION: $100

1 year ago

Winter, Shelby, and Jason Urnberg

Winter, Shelby, and Jason Urnberg

DONATION: $25

We â 1 year ago

tbones15

tbones15

DONATION: $50

an add on for such a great accomplishment Mark, Jessica & Bella 1 year ago

Anonymous

ANONYMOUS

DONATION: $25

1 year ago

Kim Maples

Kim Maples

DONATION: $25

1 year ago