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BRAYDEN ALEXANDER GLOBAL FOUNDATION FOR HYDRANENCEPHALY's Fundraiser:

Hydranencephaly Awareness Month - June 2015

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THE STORY:

Hydranencephaly is a rare neurological condition affecting approximately 1 in 10,000 babies across the globe. The condition presents as the absence of the brain's cerebral hemispheres (the gray area of the brain, primarily) and doctors deliver a long list of medically subjected misconceptions with the diagnosis, as it is deemed "incompatible with life". When diagnosed in utero, a recommendation to terminate is presented and encouragement to "let nature take its course" when the child survives to delivery. Families are told their child will not live a quality of life worth living. The reality of the condition is that there is hope for a quality of life worth living with a strong support team of optimistic care professionals and parents armed with the information and tools to advocate for quality of care for their child. Founded in 2011 under our parent name Brayden Alexander Global Foundation for Hydranencephaly, Inc., Global Hydranencephaly Foundation provides individualized support, information, and advocacy services to families who are facing diagnosis for their child - regardless what stage of the journey they are on when they find us. We have a network of families that includes 430+ individuals that work to share their experiences, support one another, and ultimately serve as family during a journey full of unknowns. Our goal is to implement more organized programs to provide a greater level of support, especially to our international families, that will best fulfill the needs they face challenge with: "The Hive" Equipment Lending Program, "Welcome to the Family" kits for those just connecting or facing diagnosis for their child, and eventually medical grants to assist with treatment and services that may otherwise be out of reach for a child. Please consider donating to our mission. If you're not able, please share this opportunity with your own family & friends in hopes of us achieving our goal. There are several other ways you can support as well - volunteering your time, talent, and/or skills; sharing our mission and helping to bring greater awareness to your own community, or simply by learning all that you can so you have the accurate information to share with others who may so desperately need it! Find us in a variety of places around the web by starting at our website: http://www.hydranencephalyfoundation.org GHF is a registered 501c3 tax exempt nonprofit organization. EIN: 45-2113600 Thanks for your time and your support!

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