Erin Fox via Crowdrise
October 09, 2014
BENEFITING: PCD KS FOUNDATION
Help us raise money to further research and awareness of Primary Ciliary Dyskinesia. This is a very rare genetic lung disease that is under-researched and under-diagnosed. People with PCD have cilia with little to no function. The function of our cilia is to keep the lungs, sinuses and ears free of organisms and debris that can cause infection and disease. As a result of this dysfunctional cilia they will face chronic, recurrent infections in the lungs, ears and sinuses; all of which that can lead to serious and permanent damage.
In the event that we meet our fundraising goal, we will wear a Justin Bieber t-shirt for one week straight.
**NEW! Since we were so successful at meeting our $2,000 goal...we are upping the ante. If we can raise $5,000...the director of the PCD Foundation, Michele Manion, will wear the Justin Bieber shirt. If we raise $10,000...Michele Manion will wear it to the International Cilia Conference in Crakow, Poland on October 20!!!