Yes people, it's happening; I'm running my first marathon in the 2013 NYC marathon with the Jackson Gabriel Silver Foundation (TEAM JGSF), raising money to find a cure for Epidermolysis Bullosa (EB) a devastating and life-threatening skin disease that affects children from birth. For a child with EB, the slightest touch can cause their skin to blister and tear apart. Children with severe forms of EB have a 60% risk of dying by age 15, and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his or her shortened life.
There is tremendously encouraging work underway, and a cure for EB is within reach. JGSF is aggressively funding research. In the past 3 years, JGSF has raised over $1.5 million for disease research and is helping to fund the promising work taking place at leading institutions such as Stanford and the University of Minnesota.
Please consider making a donation to help me reach my fundraising goal of $2,500 and help children diagnosed with EB live long and pain-free lives!!
For more information about EB, go to http://www.jgsf.org/.
For images of some of the children that can be helped by your donation, go to http://www.jgsf.org/EB-images.html.
Thank you so much!
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