Benny's Breathers Foundation
Organized by: Valerie Stancill
Benny's Breathers Foundation is in honor /memory of my husband (Benjamin "Benny" Stancill ") who passed away from a rare lung disease called Pulmonary Arterial Hypertension (PAH/PH). Are you familiar with this disease? I am sure you are not, which is why I have vowed to continue to PHight against this disease and bring awareness to the community. I fought with and for my husband as he struggled with this disease for 14 years and I watched as his life was snatched from him! Pulmonary Arterial/Pulmonary Hypertension is high blood pressure in the lungs causing the arteries of the lungs to tighten and stiffen, the right-side of the heart has to work harder to push blood through narrowed arteries in the lungs. Eventually, the extra stress causes the heart to enlarge and become less flexible leading to right side heart failure. People living with PAH/PH struggle against continuous breathlessness, chest pain, and dizziness that make everyday task like getting dressed or walking up stairs practically impossible. They also see an average of three physicians and wait almost three years before being accurately diagnosed. This delay causes the disease to progress as you are trying to obtain the proper diagnosis. Unfortunately, PAH/PH mimics other diseases making the diagnosis difficult. PAH is a chronic and currently incurable disease, which is why I MUST continue to PHight to help find a cure for those patients and families suffering from this disease. Benny's Breathers Foundation will promote longevity, education, support and a healthy lifestyle to those patients and families living with PAH/PH. One step, one breath closer to a cure...