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Sanfilippo Research Foundation, Inc.

Sanfilippo Research Foundation, Inc...
CROWDRISE : Sep 27, 2013
Tax ID: 04-3565765
BASED: Wellesley, MA, United States

CHARITY WEBSITE: http://www.facebook.com/bensdream

Sanfilippo Research Foundati...

Cure Sanfilippo Syndrome

Our mission is to promote awareness and raise funds to support research aimed at finding a cure for all types of Sanfilippo Syndrome so Benjamin's friends can realize their dreams.

Benjamin Siedman had Sanfilippo Syndrome, a rare & fatal inherited genetic disorder. Ben and thousands of children like him have a life expectancy between 12 and 20 years. There is no treatment, no cure ... Only hope.

Doctors can do little for Sanfilippo's symptoms and nothing to stop the catastrophic regression that Ben faced. That is why we created the Sanfilippo Research Foundation.

Our mission is to promote awareness and raise funds to support research aimed at finding a cure for all types of Sanfilippo Syndrome so Benjamin's friends can realize their dreams.

Tax ID: 04-3565765 • http://www.facebook.com/bensdream

Fundraisers

Purple Lemonade for Ben's Dream

Purple Lemonade for Ben's Dr…

Amount Raised:

$56,211

 

56% Raised of $100,000 Goal