Ben's Medical Costs
Organized by: Aaron Satterlee
October 29 Update
October 29, 2016
Ultimately, this is about whether or not Ben will live long enough to be a part of his daughter's life. Without the money to afford treatment, Ben's quality of life continues to go downhill. Without treatment, he will die, leaving his wife alone to raise their daughter.
Ben, who usually receives 4 infusions a month, has only received one since July because he cannot afford the payments. I started this fundraiser in February because he had a transportation crisis, but now in Oct/Nov, this situation eclipses that of earlier in the year. The situation is urgent, please help.
A most deserving guy and my friend of 30+ years, Ben has Variegate Porphyria, which has plagued him for some years now, just as his mother before him. Ben is a great guy and deserving of all of our help. This fundraiser is literally about prolonging his life!
Ben and his wife Shantel have been through some rough times these past few years. A few years back, he received the diagnosis of Variegate Porphyria, which has meant a drastic change to his life as his situation has deteriorated. He eventually became unable to work any longer. Back in February I started this fund when he faced a transportation crisis, which is a big deal since he needs to get to the hospital weekly for his necessary treatments. Soon after, he found out his wife was pregnant, finally a dose of good news!
But now, right as his wife is about to give birth, his situation has taken a dire turn. He has been put into a rough situation from both the hospital system near his home and insurance. The hospital increased the cost of his life-prolonging treatments by 250% and insurance refuses to pay that difference! Ben and Shantel have sold everything, decided to move to another state to be near family, and need our help to make the transition to a new state and afford those all-important treatments.
Thanks for your outpouring of love and support. #Porphyriaawareness #APF #AmericanPorphyriaFoundation #variegateporphyria