BENEFITING: TEAM PHENOMENAL HOPE INC
EVENT DATE: Oct 22, 2016
We are racing with Team Phenomenal Hope Brasil to petition the Brasilian government to review their Federal HAP Protocol and allow patients access to all therapies available worldwide, isolated and/or combined.
We are racing for people who live with a disease called pulmonary hypertension.
In Brazil, the federal government provides only 3 of the 14 FDA-approved drugs for treatment, and only in isolation (the doctor cannot combine more than one drug).
Team Phenomenal Hope Brasil’s goal is to collect 50,000 signatures supporting the petition.
Sign it here: https://www.change.org/p/ajude-a-salvar-os-pacientes-de-hipertensão-pulmonar
Unfortunately there is no cure for pulmonary hypertension.
Why are we doing this?
Team PHenomenal Hope is an endurance team that uses extreme races to raise awareness about pulmonary hypertension and funds to find a cure. Pulmonary arterial hypertension (PAH) is a chronic, progressive illness, making people short of breath, fatigued, light-headed and when it is advances leads to heart failure. PAH is a disease that affects people around the globe, and although there are 14 FDA-approved treatments, there is no cure.
Team PHenomenal Hope is racing to make a difference. We hope you will join us in this race towards a cure for this disease.
Where do your donations go?
All donations raised through this campaign will help fund our efforts to support the growth of our PHenomenal Impact fund, our new initiative to fund research and unique needs in the PH community.
For more information about Team PHenomenal Hope in Bertioga Meresias, please go to http://teamphenomenalhope.org.
- To train and race in honor of those affected by pulmonary hypertension
- To raise awareness about the disease
- To raise money to support the PH community
- To inspire others to take an active step in this race towards a cure.