bethanne kearney

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Kimberly SAYS:
Thank you so much for contri…
Thank you so much for contributing to our fundraising efforts on behalf of Fragile X.

The National Fragile X Foundation’s mission is to unite the Fragile X community to enrich lives through educational and emotional support; promote public and professional awareness; and advance research toward improved treatments and a cure for Fragile X.

The Funds raised through the Let ‘Em Know 5k awareness campaign go directly to support this mission nationally through the Foundation and locally through the Community Support Network. Managed by the National Fragile X Foundation (NFXF) the Community Support Network (CSN) is a nationwide network of dedicated volunteer groups. These groups connect families through activities with parents, caregivers, siblings and professionals who understand the daily issues of living with Fragile X. CSN affiliates around the country also host educational seminars both large and small for families and professionals within their community, provide financial assistance to families to attend events and Fragile X related conferences, and advocate on behalf of the Fragile X community both nationally and locally.

The Greater Atlanta CSN does just that, often times partnering with the Fragile X clinic right here in Atlanta at Emory University. We have hosted family gatherings, fundraising events, provide referrals to professionals in our area to assist families in getting their needs addressed in regards to Fragile X treatment, supported the International Fragile X conference and have sent folks to National Fragile X Advocacy Day. We have connected families throughout Georgia and are working to create more awareness within the educational and medical/healthcare communities.

Your contribution will go a long way in supporting these efforts which will have an impact on individuals like my son and families dealing with Fragile X.

Thank you for making a difference!

Kim and Andrew
4 years ago
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bethanne kearney
bethanne kearney
myrtle beach, SC United States
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