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Alex Graves' Fundraiser:

Beyond Batten

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Alex's Photo

BENEFITING: Beyond Batten Disease Foundation

EVENT: The San Francisco Marathon 2016

EVENT DATE: Jul 31, 2016

Alex Graves

THE STORY:

Batten disease is a rare, fatal, inherited disorder of the nervious system that usually begins in childhood. The first symptom is usually progressive vision loss in previously healthy children followed by personality changes, behavioral problems and slow learning. Progressive loss of motor functions (movement and speech) start with clumsiness, stumbling and Parkinson-like symptoms; eventually, those affected become wheelchair-bound, develop psychiatric symptoms, are bedridden, and die prematurely. 

 

Little is known about Batten disease, and, sadly, at present, little is being done to find a cure for this nasty disease. Every year, many families around the world are devastated to learn that their beautiful children are innocent victims of Batten disease. Three years ago, my cousins Jessica and Tim Clark were diagnosed with Batten. It is a disease not just borne by those diagnosed, but by all friends, family and loved ones as well. 

 

Organizations like the Beyond Batten Disease Foundation, the Charlotte and Gwenyth Gray Foundation to Cure Batten Disease, and many others are seeking to find a cure and prevent families from losing their children to Batten disease. Please join me in contributing to their efforts. Thank you very much for any and all help. For Jessica and Tim Clark and family and the many others affected by Batten Disease. 

$4,075

MONEY RAISED
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  • Anonymous

     

  • Anonymous

    $100

  • Anonymous

    $50

  • Anonymous

    $50

  • Anonymous

    $100

  • Anonymous

    $50

  • Anonymous

    $150

  • Anonymous

    $25

  • Amber Matthews

    $25

  • Uncle Tom/ Aunt DeeDee Engler

    $500

  • Anonymous

    $75

  • Anonymous

    $50

  • Kevin and Susan Gentry

     

  • Crowe family

    $25

  • Victor Rudo

    $100

  • Anonymous

    $25

  • Lee Family

    $25

  • Amanda

     

  • Matt johnson

    $25

  • Sars & Jards

    $50

  • Anonymous

    $250

  • Ross

    $100

  • BeeeRye

    $25

  • Anonymous

    $10

  • Nathaniel Fleming

    $25

  • Uncle Mike and Marie

    $1,000

  • Elizabeth Dowen

    $25

  • Zach Eppers

     

  • TG

     

  • Aunt Karen & Uncle Steve

    $260.10

  • GRANDMA LOIS

    $100

  • Bruce Graves

    $100

  • Anonymous

     

  • Don and Kay Klinker

    $50

  • Amanda Cruse

    $25

  • Jennifer(Thoennes) James (1st cousin once removed)

    $50

  • Anonymous

    $230

  • Trista Connor

    $25

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The Team: $4,075 TOTAL RAISED SO FAR

Donor Comments

Trista Connor

Trista Connor

DONATION: $25

1 year ago

Anonymous

ANONYMOUS

DONATION: $230

1 year ago

Jennifer(Thoennes) James (1st cousin once removed)

Jennifer(Thoennes) James (1st cousin once removed)

DONATION: $50

All of our love, thoughts, and prayers are with you! 1 year ago

Amanda Cruse

Amanda Cruse

DONATION: $25

Good Luck Al! 1 year ago

Don and Kay Klinker

Don and Kay Klinker

DONATION: $50

Our prayers are with you 1 year ago

Anonymous

ANONYMOUS

1 year ago

Bruce Graves

Bruce Graves

DONATION: $100

1 year ago

GRANDMA LOIS

GRANDMA LOIS

DONATION: $100

1 year ago

Aunt Karen & Uncle Steve

Aunt Karen & Uncle Steve

DONATION: $260.10

1 year ago

TG

TG

1 year ago