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BikeForKam Kam's Fundraiser:

Bike For Kam 2016

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Here is the final recap of adventure for charity!
July 20, 2016

Hello,  Together, we have raised 41k for HIBM medical research. Thank you for your donations and support. Per tradition Kam has compiled on-the-road  See more

BENEFITING: ADVANCEMENT OF RESEARCH FOR MYOPATHIES

EVENT DATE: May 28, 2016

BikeForKam Kam

THE STORY:

THE STORY: Welcome to our FINAL year of Bike for Kam!

wwww.bikeforkam.com

Bike for Kam is a grassroots project founded by a group of friends in 2011. 13 years ago our friend Kam began what would be a long journey of a very rare and incurable muscle disease called, HIBM (Hereditary Inclusion Body Myopathy); a very rare genetic muscle debilitating, and degenerative condition. It causes progressive muscle wasting and weakness and begins in young adulthood (usually 20-30) and can lead to a quadriplegic state within 10-15 years. Patients lose muscle strength until they can no longer walk, use their arms, hands or even hold up their head.  It is extremely rare, therefore there is not a lot of money or interest to do research and fund a cure.

The good news is that through grassroot efforts the technology exists to treat/cure HIBM and halt its progression. One of the treatments is already being tested on humans, and a gene therapy technology that has been FDA greenlit for human clinical trials. The human clinical trials could start TODAY if we had the necessary funding. 

Prior to HIBM, Kam was active and played soccer for nearly 12 years.  However, because of the progression of HIBM Kam has had to employ the use of a cane to walk, then leg braces, and now confined to a wheelchair. Today, HIBM has begun to take use of her arms, shoulders, hands, neck and fingers...

To date, our small grassroots project has raised over 100k for HIBM research.

Tell ALL your friends and family about us as the success will depend on how much our project is passed around.  There are many patients like Kam, and like her, they are all waiting for treatment to surface.  This year Bike for Kam, Bike for HIBM is biking from San Francisco to Los Angeles on Friday, May 28th - Saturday, June 4, 2016

For more information visit:  www.BikeforKam.com

*international donations are accepted here.  

All donations are tax deductible. After you donate you will receive an email receipt :).

DONATE

To This Fundraiser

$41,055

MONEY RAISED
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  • Rim Family

    $150

  • Rebecca Jenkins

    $25

  • Anonymous

     

  • Vu Nguyen

    $75

  • Lynnette & Thomas

    $50

  • Patrick Adams

    $250

  • Dan Crane

    $25

  • Anonymous

    $25

  • Rob Lieber

    $50

  • Anonymous

     

  • Mark Bomback

     

  • Anonymous

     

  • Ian Fenty

     

  • Riki Lindhome

    $100

  • TS

    $500

  • Caduceus Medical Group

    $100

  • Kal Raustiala

     

  • Jane Anderson

     

  • Logan

    $100

  • Tom Grieves

    $25

  • Natalie

    $50

  • S & J Randolph's

    $150

  • Anonymous

    $30

  • Damon Ott

    $200

  • Chris Silber

    $100

  • Mary & Eric

    $100

  • Chris Harris

    $100

  • Christy Zhu

    $25

  • Elaine Gant

    $100

  • Debbie Mitchell

    $50

  • Bea and Danny

    $50

  • Anonymous

    $25

  • Julie Ogden

    $50

  • Ty

    $25

  • Deanna

    $25

  • Ricki and Vicky

    $50

  • Manna

    $100

  • Anonymous

    $25

  • Anonymous

     

  • Paul & Elena

    $50

  • Sasha

     

  • Anonymous

    $100

  • Bitsie Tulloch

     

  • Sang Koh

    $25

  • Philippe Maigret

    $100

  • Jeffrey Morris, Morris FutureWorks

    $50

  • Peter Farrelly

    $500

  • The Menendez Family

    $100

  • Anonymous

    $50

  • Anonymous

    $500

  • Sung and Jacob Liskin

    $50

  • Rosemary Wettels

    $50

  • Laura Croff Duncan

     

  • Cindy Strausmann

    $20

  • Katie & Ru Sommer

     

  • OpenDrives

    $9,000

  • Jamie

    $50

  • Perry Kongrungparkorn

    $100

  • Charles Lin

    $25

  • Joy lewis

    $100

  • Sue and John Lim

    $300

  • Julie Chebbi

    $50

  • Kristin Dunlavy

    $25

  • Maria Faillace

    $50

  • Nikki

    $25

  • Ashleigh and Andrew Powell

    $100

  • Anonymous

     

  • From Pismo Beach, saw you on KCBY.

    $20

  • Patora family

    $25

  • Julia from Lompoc

    $200

  • Lauren Pray

     

  • The Reagans

     

  • Jackie

     

  • Adena Edwards

     

  • John & Sheila Hazelroth

    $100

  • Greg, Andrea & Benjamin

    $50

  • Dane Robinson

    $175

  • David Eisenman

    $100

  • Linda Nguyen

    $50

  • Ro and Tel

    $50

  • Jerry Tillett

    $100

  • Nasman

    $200

  • Mike and Ellen Hodorek

    $50

  • Dad & Mama Joyce

     

  • Andrey

    $25

  • Laurie B.

    $25

  • Aj, Kathi,jack,& Makaila

    $50

  • Amanda

    $25

  • rudi

    $25

  • David Cann

    $100

  • Ted

    $50

  • Irene Lubin

    $100

  • manuel

    $25

  • Anonymous

    $25

  • Ted's sister Marcia

    $25

  • Anjana

    $100

  • Boston's Shelby TWP

    $765

  • Michigan raffle

    $656

  • Carla

    $50

  • Black Olive

    $50

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117% Raised of $35,000 Goal

Fundraise for this Campaign

The Team: $41,055 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

BikeForKam Kam

Amount Raised

$19,751

 

56% Raised of $35,000 Goal

Fundraiser Title

Cole Haddon and Lindsay Devlin

Amount Raised

$12,700

 

102% Raised of $12,500 Goal

Fundraiser Title

Wyatt Wong

Amount Raised

$1,620

 

81% Raised of $2,000 Goal

Fundraiser Title

Ben and Melissa

Amount Raised

$1,465

 

37% Raised of $4,000 Goal

Fundraiser Title

Sara and Markham Nacion

Amount Raised

$1,385

 

46% Raised of $3,000 Goal

Fundraiser Title

Viet Nguyen

Amount Raised

$1,250

 

63% Raised of $2,000 Goal

Fundraiser Title

Andrew Gutierrez

Amount Raised

$935

 

47% Raised of $2,000 Goal

Fundraiser Title

Sarah Whitesell

Amount Raised

$840

Donor Comments

Black Olive

Black Olive

DONATION: $50

8 months ago

Carla

Carla

DONATION: $50

8 months ago

Michigan raffle

Michigan raffle

DONATION: $656

9 months ago

Boston's Shelby TWP

Boston's Shelby TWP

DONATION: $765

9 months ago

Anjana

Anjana

DONATION: $100

9 months ago

Ted's sister Marcia

Ted's sister Marcia

DONATION: $25

You are an inspiration Kam! You are in my prayers. 9 months ago

Anonymous

ANONYMOUS

DONATION: $25

9 months ago

manuel

manuel

DONATION: $25

9 months ago

Irene Lubin

Irene Lubin

DONATION: $100

10 months ago

Ted

Ted

DONATION: $50

Bike for Kam ....one of the best things I was lucky enough to be associated with. What's next? 10 months ago