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Chris Peters' Fundraiser:

Bike For Kam 2016

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BENEFITING: ADVANCEMENT OF RESEARCH FOR MYOPATHIES

ORGANIZER: BikeForKam

EVENT DATE: May 28, 2016

Chris Peters

THE STORY:

B4KAM wrote -

THE STORY: Welcome to our FINAL year of Bike for Kam!

wwww.bikeforkam.com

Bike for Kam is a grassroots project founded by a group of friends in 2011. 13 years ago our friend Kam began what would be a long journey of a very rare and incurable muscle disease called, HIBM (Hereditary Inclusion Body Myopathy); a very rare genetic muscle debilitating, and degenerative condition. It causes progressive muscle wasting and weakness and begins in young adulthood (usually 20-30) and can lead to a quadriplegic state within 10-15 years. Patients lose muscle strength until they can no longer walk, use their arms, hands or even hold up their head.  It is extremely rare, therefore there is not a lot of money or interest to do research and fund a cure.

The good news is that through grassroot efforts the technology exists to treat/cure HIBM and halt its progression. One of the treatments is already being tested on humans, and a gene therapy technology that has been FDA greenlit for human clinical trials. The human clinical trials could start TODAY if we had the necessary funding. 

Prior to HIBM, Kam was active and played soccer for nearly 12 years.  However, because of the progression of HIBM Kam has had to employ the use of a cane to walk, then leg braces, and now confined to a wheelchair. Today, HIBM has begun to take use of her arms, shoulders, hands, neck and fingers...

To date, our small grassroots project has raised over 100k for HIBM research.

Tell ALL your friends and family about us as the success will depend on how much our project is passed around.  There are many patients like Kam, and like her, they are all waiting for treatment to surface.  This year Bike for Kam, Bike for HIBM is biking from San Francisco to Los Angeles on Friday, May 28th - Saturday, June 4, 2016

For more information visit:  www.BikeforKam.com

*international donations are accepted here.  

All donations are tax deductible. After you donate you will receive an email receipt :).

DONATE

To This Fundraiser

$520

MONEY RAISED
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  • Mat Domenichini

    $25

  • Kris and Sandria

    $25

  • Chris Phelps

    $25

  • Jody Stevenson

    $20

  • Uncle Calvin

    $100

  • Michaela Pereira

     

  • Mark Peters

    $200

  • Andrew Barge

    $100

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Fundraise for this Campaign

The Team: $41,055 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

BikeForKam Kam

Amount Raised

$19,751

 

56% Raised of $35,000 Goal

Fundraiser Title

Cole Haddon and Lindsay Devlin

Amount Raised

$12,700

 

102% Raised of $12,500 Goal

Fundraiser Title

Wyatt Wong

Amount Raised

$1,620

 

81% Raised of $2,000 Goal

Fundraiser Title

Ben and Melissa

Amount Raised

$1,465

 

37% Raised of $4,000 Goal

Fundraiser Title

Sara and Markham Nacion

Amount Raised

$1,385

 

46% Raised of $3,000 Goal

Fundraiser Title

Viet Nguyen

Amount Raised

$1,250

 

63% Raised of $2,000 Goal

Fundraiser Title

Andrew Gutierrez

Amount Raised

$935

 

47% Raised of $2,000 Goal

Fundraiser Title

Sarah Whitesell

Amount Raised

$840

Donor Comments

Andrew Barge

Andrew Barge

DONATION: $100

1 year ago

Mark Peters

Mark Peters

DONATION: $200

1 year ago

Michaela Pereira

Michaela Pereira

1 year ago

Uncle Calvin

Uncle Calvin

DONATION: $100

1 year ago

Jody Stevenson

Jody Stevenson

DONATION: $20

1 year ago

Chris Phelps

Chris Phelps

DONATION: $25

1 year ago

Kris and Sandria

Kris and Sandria

DONATION: $25

Good luck Chris!!! 1 year ago

Mat Domenichini

Mat Domenichini

DONATION: $25

Rooting you to do this from NorCal to SoCal. Wow! 1 year ago