Skip to content
vietnguyen1's profile image - click for profile

Viet Nguyen's Fundraiser:

Bike For Kam 2016

Viet's Photo
Viet's Photo
Viet's Photo
Viet's Photo
Viet's Photo
Viet's Photo
Viet's Photo
Viet's Photo
Viet's Photo

BENEFITING: ADVANCEMENT OF RESEARCH FOR MYOPATHIES

ORGANIZER: BikeForKam

EVENT DATE: May 28, 2016

Viet Nguyen

THE STORY:

B4KAM wrote -

THE STORY: Welcome to our FINAL year of Bike for Kam!

wwww.bikeforkam.com

Bike for Kam is a grassroots project founded by a group of friends in 2011. 13 years ago our friend Kam began what would be a long journey of a very rare and incurable muscle disease called, HIBM (Hereditary Inclusion Body Myopathy); a very rare genetic muscle debilitating, and degenerative condition. It causes progressive muscle wasting and weakness and begins in young adulthood (usually 20-30) and can lead to a quadriplegic state within 10-15 years. Patients lose muscle strength until they can no longer walk, use their arms, hands or even hold up their head.  It is extremely rare, therefore there is not a lot of money or interest to do research and fund a cure.

The good news is that through grassroot efforts the technology exists to treat/cure HIBM and halt its progression. One of the treatments is already being tested on humans, and a gene therapy technology that has been FDA greenlit for human clinical trials. The human clinical trials could start TODAY if we had the necessary funding. 

Prior to HIBM, Kam was active and played soccer for nearly 12 years.  However, because of the progression of HIBM Kam has had to employ the use of a cane to walk, then leg braces, and now confined to a wheelchair. Today, HIBM has begun to take use of her arms, shoulders, hands, neck and fingers...

To date, our small grassroots project has raised over 100k for HIBM research.

Tell ALL your friends and family about us as the success will depend on how much our project is passed around.  There are many patients like Kam, and like her, they are all waiting for treatment to surface.  This year Bike for Kam, Bike for HIBM is biking from San Francisco to Los Angeles on Friday, May 28th - Saturday, June 4, 2016

For more information visit:  www.BikeforKam.com

*international donations are accepted here.  

All donations are tax deductible. After you donate you will receive an email receipt :).

DONATE

To This Fundraiser

$1,250

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Viet Nguyen

    $100

  • Thuy and Marc Cortes

    $100

  • Rachel Myung

    $50

  • Anonymous

    $100

  • Lise

    $25

  • Oosh

    $100

  • Deanna

    $25

  • Ricki and Vicky

    $50

  • Manna

    $100

  • Paul & Elena

    $50

  • Perry Kongrungparkorn

    $100

  • Joy lewis

    $100

  • Linda Nguyen

    $50

  • Jerry Tillett

    $100

  • Nasman

    $200

  •  
  •  
  •  
 

63% Raised of $2,000 Goal

Fundraise for this Campaign

The Team: $41,055 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

BikeForKam Kam

Amount Raised

$19,751

 

56% Raised of $35,000 Goal

Fundraiser Title

Cole Haddon and Lindsay Devlin

Amount Raised

$12,700

 

102% Raised of $12,500 Goal

Fundraiser Title

Wyatt Wong

Amount Raised

$1,620

 

81% Raised of $2,000 Goal

Fundraiser Title

Ben and Melissa

Amount Raised

$1,465

 

37% Raised of $4,000 Goal

Fundraiser Title

Sara and Markham Nacion

Amount Raised

$1,385

 

46% Raised of $3,000 Goal

Fundraiser Title

Viet Nguyen

Amount Raised

$1,250

 

63% Raised of $2,000 Goal

Fundraiser Title

Andrew Gutierrez

Amount Raised

$935

 

47% Raised of $2,000 Goal

Fundraiser Title

Sarah Whitesell

Amount Raised

$840

Donor Comments

Nasman

Nasman

DONATION: $200

Inspiring as always. 1 year ago

Jerry Tillett

Jerry Tillett

DONATION: $100

1 year ago

Linda Nguyen

Linda Nguyen

DONATION: $50

To heart, strength, courage, and friendship. 1 year ago

Joy lewis

Joy lewis

DONATION: $100

Proud of you!! 1 year ago

Perry Kongrungparkorn

Perry Kongrungparkorn

DONATION: $100

1 year ago

Paul & Elena

Paul & Elena

DONATION: $50

1 year ago

Manna

Manna

DONATION: $100

better be on a bike and not a motorcycle 1 year ago

Ricki and Vicky

Ricki and Vicky

DONATION: $50

Keep On Pushin!!! 1 year ago

Deanna

Deanna

DONATION: $25

1 year ago

Oosh

Oosh

DONATION: $100

1 year ago