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BikeForKam Kam's Fundraiser:

Bike for Kam - Los Angeles to San Diego

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BikeForKam's Photo
BikeForKam's Photo
BikeForKam's Photo
BikeForKam's Photo
BikeForKam's Photo

BENEFITING: ADVANCEMENT OF RESEARCH FOR MYOPATHIES

EVENT DATE: Jun 01, 2013

BikeForKam Kam

THE STORY:

wwww.bikeforkam.com

Bike for Kam is a grassroots project founded by a group of friends who complete annual coastal bike tours to raise funds and awareness for their friend Kam, and for all those afflicted with HIBM (Hereditary Inclusion Body Myopathy); a very rare genetic muscle debilitating, and degenerative condition. It causes progressive muscle wasting and weakness that begins in young adulthood (usually 20-30) and can lead to a quadriplegic state within 10-15 years.  

Through this project they hope to raise awareness of HIBM, so that we may soon find a cure for this rare condition.

HIBM is classified as an orphan disease.  According to US criteria, an orphan disease is one that affects fewer than 200,000 people, yet there are more than 5,000 such rare disorders worldwide.  Because of its Orphan disease status, HIBM has not been “adopted” by the pharmaceutical industry because it provides little financial incentive for the private sector to make and market new medications to treat or prevent it.  In short, it's not profitable.  Because of the rarity of HIBM, Kam was told she would never meet another patient and would never see treatment in her lifetime.

Prior to HIBM, Kam was active and played soccer for nearly 12 years.  However, because of the progression of HIBM Kam has had to employ the use of a cane to walk, then leg braces, and today she has nearly progressed to a permanent wheelchair state.  HIBM has claimed most of Kam’s ability to walk and has now moved to her upper extremities. 

The good news is the technology exists to someday soon cure HIBM and halt its progression. However, progress is slow because of a lack of funding and awareness of HIBM.  

Tell all your friends and family about this grassroots project as the success will depend on how much our project is passed around.  There are many patients like Kam, and like her, they are all waiting for treatment to surface.  This year Bike for Kam, Bike for HIBM is biking from Los Angeles to San Diego on June 1 to June 2, 2013.

For more information visit:  www.BikeforKam.com

*international donations are accepted here.  

All donations are tax deductible. After you donate you will receive an email receipt :).

DONATE

To This Fundraiser

$17,250

MONEY RAISED
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  • The Hodorek Fam

    $100

  • Hazel

    $50

  • April Griffin Vasquez

    $25

  • Alex Goldstone

     

  • LARRY & SHERRY LERNER

    $200

  • Ryan Kearns

    $50

  • Samantha Shear

     

  • Carin Davis

    $100

  • Lauren Pray

    $100

  • Susan Cartwright

    $20

  • SJeanay Willis Bolden

    $25

  • Anonymous

    $100

  • Kaitlyn

    $50

  • Rada Chanmugathas

    $50

  • the littles

    $30

  • Robert

    $50

  • OIG

    $85

  • Alex, Debbie, Joshua, and Jonathan

     

  • Riki

    $50

  • Skerl Family

    $100

  • Missy Rivera

    $25

  • Liz Crow

    $15

  • Jennifer Goyette

    $10

  • Susan Johnson

    $10

  • Edward Ricourt

     

  • Rebekah Ricourt

     

  • Matthews

     

  • Anonymous

    $50

  • Ari

    $100

  • RICK & CHRISTINE RIVERA

    $50

  • Anonymous

    $25

  • Don & Donna

    $150

  • Mark & Jeannie Reyna

    $25

  • Grandpa & Grandma Carranco

    $30

  • Indra Ahuja

    $25

  • Evie Eddy

    $30

  • Yolanda

    $100

  • Amy Robb

    $20

  • Dr. Jackie Shahzadi and Phil Parker

    $15

  • Joe Stern Water

    $100

  • David Hobbins

    $100

  • Barbara Nagle

    $25

  • Rae Arballo(:

    $20

  • Nancy Tang

    $50

  • Mcleroys

    $10

  • The Whitney Family

    $40

  • Ryan and Kara Devlin

    $101

  • PJ & Honey

    $30

  • tara

    $25

  • Anonymous

    $150

  • $100

  • schindelheim

    $25

  • Anonymous

     

  • Amanda Nguyen

    $50

  • Deanna & Pete Honda

    $25

  • Renee & Mike Chavez

    $25

  • Sophia Stritt

    $100

  • Dave & Sandra

    $200

  • Ben Carranco

    $25

  • Anonymous

    $20

  • The Fuentebella Family

    $80

  • Ama Singh

    $25

  • Anonymous

     

  • David and Sau Ying Skerl

    $100

  • Susan Fahrney

    $25

  • Tattoos by Wojo (Jean & Wojo)

    $50

  • Mike & Jane Minnocci

    $50

  • Dad & Mom

    $41

  • Karen Darrin

    $100

  • Mark & Joyce Hazelroth

    $100

  • H & L

    $120

  • roycifer

    $50

  • Dave (Old Town Cafe Parking)

    $20

  • Roxanne (met in Old Town San DIego)

    $40

  • Joey and Tracy

    $50

  • Melinda L.

    $250

  • Anonymous

    $25

  • Sung and Jacob Liskin

    $50

  • Sharon Skok

    $25

  • Eric & Degen

    $50

  • Anonymous

    $25

  • Nita Minnis

    $50

  • Mikey, Trisha, Baby Chloe

    $50

  • the Chang Family from Michigan

    $100

  • Rosalyn Crockett

    $25

  • Tina Bermudez

    $50

  • Lena Alvarez-Miranda

    $50

  • Falguni Mehta and Friends

    $100

  • Ron Burgandy

    $25

  • Carter Swan & Karen Moneymaker

    $50

  • Anonymous

     

  • Karen I

    $25

  • Karen I

    $25

  • Becky Kirsch & Paul Sweeney

    $50

  • Michael Barry

    $50

  • Anonymous

    $50

  • Katie Lovejoy & Ru Sommer

    $50

  • Anonymous

    $93

  • Nanae Morofushi & Jonathan Bach

    $150

  • vickie

    $100

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43% Raised of $40,000 Goal

Fundraise for this Campaign

The Team: $17,250 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

BikeForKam Kam

Amount Raised

$10,415

 

26% Raised of $40,000 Goal

Fundraiser Title

Sara and Markham Nacion

Amount Raised

$1,150

 

115% Raised of $1,000 Goal

Fundraiser Title

Sean Lee

Amount Raised

$1,120

Fundraiser Title

Andrew Gutierrez

Amount Raised

$955

Fundraiser Title

Simon Ko

Amount Raised

$780

 

78% Raised of $1,000 Goal

Fundraiser Title

Viet Nguyen

Amount Raised

$575

 

58% Raised of $1,000 Goal

Fundraiser Title

Julie Chebbi

Amount Raised

$550

Fundraiser Title

Alexander Juarez

Amount Raised

$370

 

37% Raised of $1,000 Goal

Donor Comments

vickie

vickie

DONATION: $100

elaina and imran 4 years ago

Nanae Morofushi & Jonathan Bach

Nanae Morofushi & Jonathan Bach

DONATION: $150

Beat the shit out of this like Tae Kwon Do yo!!!! 4 years ago

Anonymous

ANONYMOUS

DONATION: $93

4 years ago

Katie Lovejoy & Ru Sommer

Katie Lovejoy & Ru Sommer

DONATION: $50

4 years ago

Anonymous

ANONYMOUS

DONATION: $50

4 years ago

Michael Barry

Michael Barry

DONATION: $50

4 years ago

Becky Kirsch & Paul Sweeney

Becky Kirsch & Paul Sweeney

DONATION: $50

4 years ago

Karen I

Karen I

DONATION: $25

4 years ago

Karen I

Karen I

DONATION: $25

I hate rare diseases! 4 years ago

Anonymous

ANONYMOUS

4 years ago