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ANGIOMA ALLIANCE's Fundraiser:

Biking for Brains

ANGIOMA ALLIANCE's Photo

BENEFITING: ANGIOMA ALLIANCE

THE STORY:

IF YOU ARE INTERESTED IN JOINING THIS RIDE FROM WHERE YOU ARE, PLEASE CREATE A PAGE BY CLICKING ON 'FUNDRAISE FOR THIS CAMPAIGN'!


Download a flyer here!


IF YOU WOULD LIKE TO MAKE A DONATION BY MAIL PLEASE MAIL TO  Angioma Alliance, 161 Jefferson Dr., Palmyra, VA 22963 AND INCLUDE 'BIKING FOR BRAINS' IN THE MEMO.


On July 27, 2016, Dr. Edward Smith of Boston Children’s Hospital removed a silver dollar sized piece of my daughter Shannon’s skull, sliced through healthy brain tissue, and began to deftly remove a walnut-sized cluster of rogue blood vessels that were growing out of control, slowly bleeding, causing seizures, and threatening my daughter’s future well-being. Angiomas, also known as cavernous cerebral malformations (CCMs), affect 1 out of 500 people. They can cause a wide variety of symptoms, including seizures, impaired vision and motor function, reduced mental faculties, and more. There is no known cure other than forced removal through a “craniotomy”. 

The operation was terrifying, but Shannon was strong and the doctor’s hand was true. Now one year later, the operation seems to have been a complete success. Shannon is off her anti-seizure medication, and there is no sign of regrowth of the “thing”. Many who are afflicted with CCMs are not so lucky – operations are not always possible, or the operations leave the patient permanently impaired. Many have the genetic form of the disease, which can result in multiple CCMs forming in various parts of their brains and brain stems throughout their lives. Research is needed to improve treatments and develop a cure. Communication and education are needed to raise awareness of this terrible disease, both among the general public and the medical community. 

On September 16, 2017, I will ride my bicycle 112 miles from my home in Granby, CT to Boston Children’s Hospital in honor of my heroes - Shannon and Dr. Edward Smith. My purpose is to raise money and awareness for the Angioma Alliance, a non-profit organization dedicated to fighting angioma. You can help me in one of three ways: 1) donating to Angioma Alliance, 2) sharing our story with your friends, and 3) joining me as I Bike for Brains. This will not be a race. You can register to ride with me at any time, for any distance. 

Yours Truly, Kent McCord

DONATE

To This Fundraiser

$1,575

MONEY RAISED
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  • Anonymous

    $25

  • Milbrandt Family

    $100

  • Kroninger Family

    $50

  • Howe Family

    $100

  • Stuart and Ann McCord

    $100

  • Anonymous

    $25

  • J/B Barrnett

    $50

  • The Austin family

    $50

  • The Darling Family

    $25

  • Kent McCord

    $25

  • Bortman Family

    $50

  • Richard Rondeau

    $25

  • Free Flow drains Brett Flagg

    $25

  • Anonymous

    $25

  • Cindy & John Adams

    $25

  • Morrow Family

    $25

  • Rob Kean

    $25

  • Keith Wallace

    $25

  • Valerie McCord

    $50

  • Brian Herr

    $100

  • Phi Alpa

    $100

  • Anonymous

    $25

  • The Sihpol Family

    $100

  • John Mosher

    $100

  • Elisa Polci

    $50

  • Alex Keally

    $25

  • Kroes Family

    $100

  • Max & Donna Rans

    $50

  • Matt and Rosa Shortsleeve

    $100

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32% Raised of $5,000 Goal

Fundraise for this Campaign

The Team: $1,575 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

ANGIOMA ALLIANCE

Amount Raised

$1,550

 

31% Raised of $5,000 Goal

Fundraiser Title

Kim Hofelich

Amount Raised

$25

 

1% Raised of $2,500 Goal

Donor Comments

Matt and Rosa Shortsleeve

Matt and Rosa Shortsleeve

DONATION: $100

Go Kent! Go Shannon! 5 days ago

Max &  Donna Rans

Max & Donna Rans

DONATION: $50

So glad your daughter is doing better Kent! 1 week ago

Kroes Family

Kroes Family

DONATION: $100

1 week ago

Alex Keally

Alex Keally

DONATION: $25

1 week ago

Elisa Polci

Elisa Polci

DONATION: $50

1 week ago

John Mosher

John Mosher

DONATION: $100

Kent, have a great ride! 1 week ago

The Sihpol Family

The Sihpol Family

DONATION: $100

What a beautiful event, Kent, we're very happy to support you! 1 week ago

Anonymous

ANONYMOUS

DONATION: $25

Best of luck Kent! 1 week ago

Phi Alpa

Phi Alpa

DONATION: $100

1 week ago

Brian Herr

Brian Herr

DONATION: $100

1 week ago