I am running the NYC Marathon on behalf of the National Marfans Foundation. This group of great people conducts research to save lives with those who have this connective tissue disorder.
Sixteen years ago, our son Billy died from a disected aorta due to Marfan Syndrome at the age of 14. It was the first time we had ever heard of it. Turns out our other son, Michael, age 11, also had the same problem with his heart. Due to the great doctors and all the research supported by the National Marfan Foundation, our son Michael is alive and well and at age 27, and is living a wonderful life! We are so grateful to this organization and the support system of wonderful people who help make this possible. We hope other lives will be saved because of the knowledge provided by the National Marfan Foundation.
I have just started to train and with everyone's help I hope not to be the last person crossing the finish line!I thank you very much for helping me in the endevor!
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