Alaina Brown wrote -
Join Bionic Lydia and her fearless team of superhero family and friends as we raise money to combat and fight congenital heart defects! Use your super power of walking, running, giving, cheering or supporting to cheer on Lydia as she participates in the SuperHero Heart Run!
Lydia was born at 30 weeks gestation at 3 lbs, 4 ozs with one of the rarest congenital heart defects, complete atrioventricular block. She also has a dilated ascending aorta, enlarged left ventricle and had an open PDA and PFO at birth. The atrioventricular node that transmits the electrical signal from the top of her heart (her atria) to the bottom of her heart (the ventricles), was damaged beyond repair in utero. A pacemaker provides the electrical signal for her heart to pump blood to her entire body and she will be dependent on it for the rest of her life.
Despite her challenges, Lydia takes on life with a radiating joy and bravery that spreads to all of those around her. Through connecting with other heart families and warriors through amazing organizations like Heart Heroes and our online heart block family, Lydia has been able to use her pacemaker and congenital heart defect as a source of pride and strength. Heart heroes also plays a vital role in raising funds to support research to better detect and treat congenital heart defects. Please join with us to support this awesome organization and support Lydia as she runs a mile to combat CHD!