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JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Fundraiser:

Brooklyn Half Marathon for Jonah's Just Begun

JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo

BENEFITING: JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN

EVENT DATE: May 17, 2014

THE STORY:

Pyare, is a Brooklyn based Camera/Steadicam Operator working in movies and television. He is running his first of what is hopefully many races, the Brooklyn Half Marathon, in support of Jonah's Just Begun.  Pyare has been inspired to fight this disease for the sake of the children that it affects, by Jonah's Just Begun and its founders, Jonah Weishaar's parents.  He is overwhelmed by what they have accomplished and feels grateful for the opportunity to play a small part in their incredible efforts.

Jonah's Just Begun (JJB) is a 501(c)3 organization.  The foundation raises funds and then distributes them to academic research groups focused on finding treatments for the ultra rare disease, Sanfilippo Type C.  The foundation was formed after Jonah, son of Jill Wood and Jeremy Weishaar, was diagnosed with this fatal disease.  There is currently no treatment and no cure.  The science that, JJB has been funding is on the brink of a treatment that will save these children's lives.  The stumbling block is funding all the research.  We are so grateful for Pyare and his efforts to bring awareness and  to raise must needed funds for Jonah's Just Begun.  Please show him your support in his efforts.

For more information on Sanfilippo and JJB please visit their website: www.jonahsjustbegun.org

DONATE

To This Fundraiser

$3,155

MONEY RAISED
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  • Romer

     

  • BK

    $25

  • Lee Vickery

    $150

  • Marcos Siega

     

  • Gernez

     

  • Beth Pivnik

     

  • Kara Doherty

     

  • Peter Ramos

     

  • MICHAEL

     

  • Ryan Hardy

     

  • Tom Fortunato and Diane Kelley

    $100

  • James & Shirley Wakefield

    $50

  • Papa Mike

    $50

  • sue fortunato

    $50

  • Murphy Occhino

     

  • Dave and Celeste

     

  • Joe Baccari

     

  • James Purefoy

     

  • Tom Fortunato

     

  • Mike, Venessa, Harrison

    $50

  • Kim Musico

     

  • Amy Birnbaum

    $25

  • Anonymous

     

  • Leitner family

    $100

  • 2 Alices Coffee Lounge

    $100

  • Marquitos

     

  • Holly Unterberger

    $50

  • Michael Sime

    $100

  • Saade & Family

    $100

  • The O'Shea Family

    $100

  • Bella Mancini

     

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105% Raised of $3,000 Goal

Fundraise for this Campaign

The Team: $3,155 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Bella Mancini

Bella Mancini

3 years ago

The O'Shea Family

The O'Shea Family

DONATION: $100

3 years ago

Saade & Family

Saade & Family

DONATION: $100

3 years ago

Michael Sime

Michael Sime

DONATION: $100

3 years ago

Holly Unterberger

Holly Unterberger

DONATION: $50

3 years ago

Marquitos

Marquitos

3 years ago

2 Alices Coffee Lounge

2 Alices Coffee Lounge

DONATION: $100

3 years ago

Leitner family

Leitner family

DONATION: $100

3 years ago

Anonymous

ANONYMOUS

3 years ago

Amy Birnbaum

Amy Birnbaum

DONATION: $25

3 years ago