EVENT DATE: May 17, 2014
Pyare, is a Brooklyn based Camera/Steadicam Operator working in movies and television. He is running his first of what is hopefully many races, the Brooklyn Half Marathon, in support of Jonah's Just Begun. Pyare has been inspired to fight this disease for the sake of the children that it affects, by Jonah's Just Begun and its founders, Jonah Weishaar's parents. He is overwhelmed by what they have accomplished and feels grateful for the opportunity to play a small part in their incredible efforts.
Jonah's Just Begun (JJB) is a 501(c)3 organization. The foundation raises funds and then distributes them to academic research groups focused on finding treatments for the ultra rare disease, Sanfilippo Type C. The foundation was formed after Jonah, son of Jill Wood and Jeremy Weishaar, was diagnosed with this fatal disease. There is currently no treatment and no cure. The science that, JJB has been funding is on the brink of a treatment that will save these children's lives. The stumbling block is funding all the research. We are so grateful for Pyare and his efforts to bring awareness and to raise must needed funds for Jonah's Just Begun. Please show him your support in his efforts.
For more information on Sanfilippo and JJB please visit their website: www.jonahsjustbegun.org