We've known Liv since she was in her Mommy's tummy. Liv has nemaline myopathy, a rare neuromuscular disorder. Liv works hard every day at sitting up, standing, walking, talking and eating. Her family works hard taking her to various therapies, making her preschool experience a great one, and raising money to fund NM research. Let's help them in this fight!
This year we are raising money for the most exciting research proposal we have received to date. It's a gene editing project that is already in clinical trials for Duchenne Muscular Dystrophy. If it works, Liv could have treatment (not a cure) in 2-3 years.
See more information at loveliv.org