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Blue Jeans for Rare Genes #Galactosemia

Organized by: Jill Donovan

Jill's Photo
Jill's Photo
 

Thank you!
February 23, 2016

Thank you so much for your generosity and support!  We are overwhelmed :) If you are local to Holmdel and plan to eat dinner on Monday 2/29 See More

THE STORY:

Did you know that Feb. 29th is Rare Disease Day? Feb. 29th is a rare day - as is the rare disease named Galactosemia that my daughter has. A person with Galactosemia cannot consume food containing lactose or galactose as they are not able to fully metabolize the galactose, so it can build up in their cells and tissues causing potential complications.  Most people have never heard of it as was the case with my family, until she was diagnosed 3 days after her birth. The routine newborn heel prick blood test picked it up and she was place on the State Registry of Rare Diseases. I am happy to report she is currently doing well. It is the future that remains unknown with regards to learning, speech and medical issues associated with Galactosemia. I could go on and on about what we have learned, but what I really want to do is reach out for your support for research.

Galactosemia is considered an orphan disorder – that is there is no/limited funding for research other than what families raise. YOUR DONATION WILL MAKE A DIFFERENCE!!  Any dollar donation amount is greatly appreciated. All the funds collected will go directly to Galactosemia research.

Donate and wear blue jeans on Monday February 29th to help spread awareness!   Blue Jeans for Rare Genes # Galactosemia.  

We thank you in advance!

For more information on Galactosemia, please visit www.galactosemia.org

$4,631

 

93% Raised of $5,000 Goal

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  • Katie Miller

    $25

  • Trisha Robertson

    $25

  • Reve Anderko

     

  • Anonymous

     

  • Joanne Eskola

    $25

  • Don Nigro

    $25

  • Helen Heinmets

    $25

  • Maureen Murphy

     

  • Shelby O'Connell

     

  • Jean Breslin

     

  • Sherri West

     

  • Ann Marie Alfieri

     

  • Jim Lawaich

    $25

  • linda Wang

    $100

  • Michael Elmes

    $50

  • Noel & Mary Zupancic

    $100

  • Joan ALi Scocco

     

  • Marie Lucier-Woodruff

     

  • George Sotirion

     

  • Debbie Mura

    $50

  • Joe & Sandy Varone

     

  • The Armandi Family

    $20

  • The Costleigh Family

    $50

  • Grace and George Freibott

     

  • Renee Geithner-Marron

     

  • Sofo Family

    $50

  • Lori Harbin

     

  • Meredith Kawer

    $10

  • Chuck & Barb Webber

    $100

  • Pat Gallo

    $50

  • The Nesley Family

    $50

  • Alisa Peters

    $25

  • Michelle Kneute

    $20

  • Jennifer Conlisk

     

  • Dale Daniels

     

  • Bonnie Passarella

    $25

  • Teresa Silletti

    $20

  • The Batchler Family

    $10

  • Matt Reed

    $50

  • Linda DeButts

     

  • Avis McMillon

    $15

  • Babs

    $50

  • Daniel Velez

    $25

  • Jackie Kugit

     

  • Tiffany Wojcicki

    $25

  • Nicole Ross

     

  • Carla

    $25

  • Debbie A. Meyer

    $25

  • David Stout

     

  • Kris Mager

    $50

  • Anonymous

     

  • Meredith Tufaro

    $25

  • Christopher Jeune

    $25

  • Jennifer & Daniel Gauvreau

    $100

  • Diane Nuttall

    $25

  • Anonymous

     

  • Laura Qaissaunee

     

  • Megan Ray

    $20

  • Anonymous

    $50

  • Jayne Mundell

    $25

  • Kyle, Lisa, Barbara and Chris

    $100

  • Susan Romeo

    $50

  • Nancy O'Shea

    $25

  • Joe and Kathy Alvino

    $30

  • The Brown Family

    $25

  • Jill Maline

    $25

  • Seth Schwartz

    $10

  • Joan Messina

    $25

  • Diana DiBuccio

     

  • Anonymous

    $15

  • Miss Dawn

    $25

  • First Discoveries School

    $50

  • The McQuiggan Family

     

  • Kim Ussmann

    $25

  • Pat Schuberth

    $20

  • Peggy Austin

    $20

  • Kristin Heineman

    $25

  • Terrence

    $100

  • The McEvily Family

    $25

  • The Fore Family

    $25

  • Stefanie Fox

    $25

  • Anonymous

     

  • Kim and Luke Mondanaro

    $25

  • The Schmidt Family

    $25

  • Sharri Hiller

    $25

  • Beth, Dan & Maggie

    $50

  • Jill Fitzpatrick

    $25

  • Jackson and Jenna

     

  • Camille Shelley

     

  • Patty Cavanagh

    $25

  • Arena

    $100

  • Jenn

     

  • Linda Bernabeu

    $50

  • Giselle Henriquez

     

  • Britt Nalley

     

  • Jennifer Yannibelli

    $25

  • Barkalow Middle School, Freehold NJ

    $125

  • Diane and Alyson Dunzello

    $50

  • Gail Harrigan

    $25

  • Jill Donovan

    $25

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Organized by

Jill Donovan

This is a direct to organizer fundraiser.

Donor Comments

Jill Donovan

Jill Donovan

DONATION: $25

2 years ago

Gail Harrigan

Gail Harrigan

DONATION: $25

2 years ago

Diane and Alyson Dunzello

Diane and Alyson Dunzello

DONATION: $50

2 years ago

Barkalow Middle School, Freehold NJ

Barkalow Middle School, Freehold NJ

DONATION: $125

2 years ago

Jennifer Yannibelli

Jennifer Yannibelli

DONATION: $25

2 years ago

Britt Nalley

Britt Nalley

For the brave and beautiful Grace, and all others affected by Galactosemia. XO 2 years ago

Giselle Henriquez

Giselle Henriquez

2 years ago

Linda Bernabeu

Linda Bernabeu

DONATION: $50

2 years ago

Jenn

Jenn

For Grace ð 2 years ago

Arena

Arena

DONATION: $100

Congratulations Jill on your success in raising awareness and funding for Galactosemia 2 years ago

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