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Boris Shimanovsky's Fundraiser:

Boris Shimanovsky - LoveLiv Cycle

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BENEFITING: A FOUNDATION BUILDING STRENGTH INC

EVENT: LoveLiv Cycle

EVENT DATE: Mar 13, 2016

Boris Shimanovsky

THE STORY:

For its fourth annual fundraiser benefitting A Foundation Building Strength (AFBS), LoveLiv will once again have a Soul Cycle ride! AFBS remains the only non-profit worldwide dedicated to finding treatment for Nemaline Myopathy, a rare muscle disease that Liv has. People with NM, including Liv, generally cannot eat, breathe and walk on their own. Life expectancy is greatly reduced due to respiratory complications. Although Liv has made great strides, she just turned 4 years old and still cannot walk or crawl, and relies on a feeding tube for some of her nutrition.  Like so many with NM, her speech is affected by severe muscle weakness in her mouth.  

 

With your help, we can find treatment to better Liv's life and those with NM.  AFBS is seeking to fund a gene therapy study for Nebulin based Nemaline Myopathy, targeting the same mutation Liv has.  If this study is successful, Liv could have treatment in a few years.  This is one of the most exciting proposals we have received and we need your help!    

DONATE

To This Fundraiser

$4,075

MONEY RAISED
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  • Marcia Jacobson and The Jacobson Group

     

  • James Kung

     

  • Will Chang

     

  • In memory of Andrea Fourakis

    $100

  • Anonymous

     

  • bradley

    $50

  • Cliff Carnes

     

  • TyWeb

     

  • Colson Barnes

    $200

  • Zach

    $50

  • roman and inna

    $500

  • paul r

    $500

  • Tyler Bell

    $100

  • Glen Straub

     

  • Philip & Pamela Marcus

     

  • ahad

    $300

  • lauren

    $25

  • Tn'T

     

  • Mike and Shaina

    $100

  • Sharon and Bruce Friedman

     

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82% Raised of $5,000 Goal

Donor Comments

Sharon and Bruce Friedman

Sharon and Bruce Friedman

8 months ago

Mike and Shaina

Mike and Shaina

DONATION: $100

2 years ago

Tn'T

Tn'T

2 years ago

lauren

lauren

DONATION: $25

2 years ago

ahad

ahad

DONATION: $300

2 years ago

Philip & Pamela Marcus

Philip & Pamela Marcus

2 years ago

Glen Straub

Glen Straub

2 years ago

Tyler Bell

Tyler Bell

DONATION: $100

2 years ago

paul r

paul r

DONATION: $500

2 years ago

roman and inna

roman and inna

DONATION: $500

2 years ago