This will be my first time running the Boston Marathon, something I've wanted to do for a long time. As kids, we spent every Patriots Day volunteering at the Wellesley water station watching the waves of runners go by. From the dominant Kenyans to the irrepressible Johnny Kelley, each runner had his/her own compelling story, his or her own reason for pounding 26 miles of concrete.
My brother Karl and I are running for the Cystic Fibrosis Foundation, an organization dedicated to the development of new drugs to fight CF improve the quality of life for those with the disease and ultimately to find a cure. Cystic Fibrosis is a chronic disease that affects the lungs and digestive systems of about 30,000 children and adults in the United States (70,000 worldwide). CF causes mucus to build up and clog the lungs, making breathing very difficult and potentially causing permanent lung damage. I encourage you to visit http://www.cff.org/ to learn more about this disease and the important initiatives supported by the Foundation.
Karl has spent several years working in collaboration with the CF Foundation to develop a new drug (just approved by the FDA last month!) that significantly improves lung functioning of people affected with CF by countering the effects of a particular gene mutation. I am extremely proud of my brother for the work he has done and thrilled to do my part towards the same goal.
I am grateful for your support and for every clear breath I take.
P.S. That's me and Karl running in 1993 (you can tell by the "vintage" photo quality, my scrunchie and XL t-shirt). I joined him at the half way point. I hope to run all 26.2 this time around.