BENEFITING: National Fragile X Foundation
EVENT DATE: Nov 21, 2014
In celebration of my 50th birthday, I am asking you to please make a donation to my 50 for 50 in 50 Fundraiser for Fragile X.
Your donation means more to me than any birthday present ever could because it goes to the National Fragile X Foundation, an organization that is near and dear to my heart for very personal reasons.
As many of you know, I have two beautiful Daddy’s girls – Kenney and Christy – that live every day with Fragile X, a genetic condition that is the most common cause of intellectual disability and the leading known genetic cause of autism. When a family receives a Fragile X diagnosis, the NFXF is the number one place they can turn to for support, education, and medical-referral services.
When Kenney and Christy were young, Sherri and I struggled to find answers. We spent years visiting pediatricians and specialists looking for answers – but doctors seemed to be asking the wrong questions. It wasn’t until Christy’s pediatrician, spurred by an awareness postcard sent by the Foundation, recommended that we look into genetic testing that finally resulted in the correct diagnosis. That diagnosis, literally, changed our lives. We finally had clarity, focus, and a path forward.
As life altering as that Fragile X diagnosis was for us, the Foundation has continued to this day to be a huge source of support, education, research…and hope. The Foundation has been instrumental in bringing a Fragile X Clinic to Texas Children’s Hospital; supporting numerous promising drug trials in which Christy has participated; producing Fragile X- specific teaching materials that we can share with school; and bringing together a much larger community of the most caring researchers and dedicated parents that we now call family.
I know how much impact the Foundation has had on my family, and I know there are so many more families facing the impact of the Fragile X diagnosis that the Foundation can support…with your help. That is why I hope to raise $50,000 in 50 days. Please help me surpass my goal and celebrate with me the greatest 50th birthday a father could ever have.
Middle-aged Lawyer, Loving Father, Husband and NFXF Supporter
All proceeds from this fundraiser will benefit the National Fragile X Foundation.