Brain Surgery for Esmey
Organized by: Sandra Miranda
EVENT DATE Jan 27, 2016
**Update #1 -Jan 29th
Sorry for the delay in updates. It's been a busy, emotional two days.
Esmey's surgery was a success! She was in surgery for five hours. The surgeon is very confident that he "demolished" the tumor and was able to remove scar tissue. With the help of God, Esmey did not endure any new deficits. No new nerve damage was caused during surgery. It was such a relief to hear.
She spent her first night in the ICU & was moved to a private room yesterday morning. All though she is experiencing a lot of pain and nausea (all normal) she is recovering well. Praying that the pain & nausea subside soon.
Thank you again to all who have helped & prayed for her We are forever grateful!
to all my family, friends, and the entire social media world. allow me to introduce myself. My name is Esmeralda Miranda, 37 years old, married with two beautiful little girls ages eleven and five.
As some of you may know I have been dealing with some major health issues due to a brain tumor. While I have been very private, and only my husband and family have seen me at my worst. I 'am finally opening up as I need your help.
Below is some of my history dealing with this tumor in the past and where it has brought me today.
Back in the Spring of 1998 is where my story begins and where my whole world changed. It was discovered that I had a brain tumor that would require surgery. At the time I was only 19 years old. This type of tumor is called Meningioma, which occurs most commonly in older women. The tumor was located at the base of my brain in close proximity of crucial nerves. I felt fortunate enough to only have walked out of that surgery with only two damaged nervers (shoulder drop and left vocal cord. I took numerous speech therapy sessions to learn how to talk again, and slowly recovered. At the time everything seemed good, and my life seemed to be back on track. I married the love of my life and we started a family. All I had to do from then on was to have regular MRI's every five years to monitor for any new tumors.
In January of 2013, fifteen years later I had a routine MRI. Where I was shocked to find out I had a new tumor around the same location. After meeting with Neurosurgeons and discussing my case I was informed that surgery was not an option. At the time I was free of symptoms, and the risk outweighed the need. So my only option was to have Stereotactic Radiation (one strong dosage). I moved forward with their recommendation and was to have an MRI yearly to monitor new growth.
This last spring (2015) I began to have unexplained symptoms. First it was just a headache and I just dismissed it as a tension headache. But after five days of no relief I began having new symptoms that persisted and became more intense as time went on. For about a month and a half I struggled with dizziness, vertigo, nausea, tongue twitching, fatigue, back and neck pain, ear pain, sinus pressure and it became so difficult to sleep through the pain. My symptoms were extreme at times, but I was building a tolerance and learned to push through them. Due to insurance practices and referral wait times, and seeing different specialist, it was a month and a half before I finally had a diagnosis. Through a new MRI we discovered that my tumor had a new growth. I was devastated! In late January I had my annual MRI and there was no changes. The tumor was growing faster than normal. In the course of seeing all these doctors I was also seen by an ENT, who notified me that the titanium mesh plate from the original surgery had shifted and was protruding through my ear. This is one of the main reasons I was in so much pain. While I was devastated about the news, I was optimistic that things would start to move fast and that I would get a plan of care from my doctor.
On August 18th, after dealing with severe symptoms I went to the ER, where they discovered I had a small brain bleed. I was admitted into the hospital where I was treated and they ran several test and a CT to try and figure out where the bleeding was coming from. It was the tumor bleeding but the reason was unknown. A few days later I was discharged and told again that the risk of surgery still outweighed the need. I went home where I was recovering fine. When all of a sudden I begin to worsen again. I was incoherent and my family made the decision to take me in again. At the hospital it was confirmed that I had another brain hemorrhage. I had surgery where they took care of the brain hemorrhage and finally removed the titanium mesh plate. Since my tumor is located in the jugular area and surrounding several cranial nerves the risks are high, it was possible for me to need a trachea, and a feeding tube after the surgery at a minimum. It was unknown if these damages would be permanent or not, and would require several reconstructive surgeries in the future. Due to the risks my husband and I decided to wait on the surgery and seek other options.
I was in the Neuro-ICU for 18 days before being moved out. Since being discharged from the hospital in late September I have been recovering at home from the hemorrhage. This has been a slow painful recovery. While searching for other options and doing my own research I sought out a doctor from California, that had been suggested by coworker. He performs the necessary brain surgery that I need using minimally invasive endoscopic techniques. This isn't offered local to me or by any other doctors that I have found. After much thought and prayer I have faith that this is the right surgery for me. Not only for me, but for my family. This tumor has been taking my independence and self-worth little by little, day by day. I have two little girls at home whom I need to fight for. They need their mom! So while I feel like I have found the answer to my tumor. The cost of the surgery in its self far exceeds my own resources. The surgery cost is $108,000, since it is out of network my insurance will only cover part of the cost, I will be responsible for approx $50,000.00 of the cost of surgery. Not including traveling cost. I wish I didn't need to ask for help and could just quietly take care of this on my own. But this surgery is needed to restore my health. I am humbly asking for help.